Events
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Virtual Meetup | Supportive Families Embracing Disability Journeys
Join us on the 3rd Thursday of every month. This is a Virtual Meetup OPEN TO parents of young adult and adult children ages 19 and above living with hydrocephalus and any type of disability.
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Eat for a Cure at Panda Express
Whether it’s lunch with co-workers, dinner with family, or a quick meal on the go, your order helps us fund life-changing research, raise awareness, and support the hydrocephalus community nationwide.
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Virtual Meetup | Sharing the Journey Women’s Group Age 40+
Join our midlife women living with hydrocephalus on the 3rd Saturday every month! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.
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Virtual Meetup | L1CAM Family and Relatives
This virtual meetup is designed to support and to learn more about the impacts of the L1CAM syndrome on families within our community. Join us on the 3rd Tuesday of every 3 months!
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Virtual Meetup | Building Bonds- Parents of Young Adults Living with Hydrocephalus
Virtual EventWe are bringing together parents of young adults across the US together! Join us on the 4th Sunday of every month. This is a Virtual Meetup OPEN TO parents of young adult children ages 19- 29 living with hydrocephalus.
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Virtual Meetup | Breaking Barriers Men’s Talk!
Join men living with hydrocephalus on the 4th Wednesday every month! This group is a safe place where men can share their experiences, support one another, and enjoy the company of those men that understand the journey of living with hydrocephalus.
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Virtual Meetup | Yoga on the Brain
Join us on the 4th Thursday every 3 months to explore Therapeutic Tools such as: Meditation + Mindfulness, Somatic Movement, Pranayama Breathwork, and Pain Management!
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Virtual Meetup | State of Nevada Community Meet-Up, Rooted In Support
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.
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Virtual Meetup | Adults with Hydrocephalus (Mid-Atlantic & New England)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.
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Virtual Meetup | Adults with Hydrocephalus (Southern)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.
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Virtual Meetup | Orange County, CA NPH Support Group Meeting
Please join the UCI virtual NPH support group led by Dr. Jefferson Chen, Vice Chair of the Department of Neurological Surgery. The group is design for those living with NPH in Orange County, CA and beyond!
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Virtual Meetup | Adults with Hydrocephalus (Western)
Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.