Articles
Empowering Your Child to Be Their Own Advocate: Navigating Healthcare with Confidence
Empowering your child to advocate in healthcare builds confidence, communication skills, and independence for navigating lifelong medical care.
Why Do Shunts Fail? A Glimpse Into Shunt Valve Evolution
Learn why shunts fail, how shunt valves have evolved, and what new innovations aim to reduce revision rates and improve long-term outcomes.
Pregnancy with Hydrocephalus: An Essential Overview
Plan pregnancy with hydrocephalus: understand risks, manage symptoms, prepare for delivery, and navigate postpartum recovery with confidence.
Hydrocephalus Association Scholarship: Top Application Tips
Prepare a strong Hydrocephalus Association (HA) Scholarship application with key tips to stay organized, plan ahead, and submit your best work.
Government Benefits for People Living with Hydrocephalus
Learn how government benefits support people with hydrocephalus through financial assistance, medical coverage, and programs that help improve daily life.
Tips for Navigating the Holidays With Hydrocephalus
Navigating the holidays with hydrocephalus can be challenging. Learn tips for managing symptoms, reducing stress, and finding meaningful ways to celebrate.
Body Image and Scars: Living with Hydrocephalus
Scars from hydrocephalus surgery can impact body image and confidence. This article explores why scars can feel overwhelming and how to rebuild self-acceptance.
Abdominal Pain and Shunts
Understand how abdominal pain may relate to your shunt, what the causes may be, and when to contact your doctor.
Lumbar Puncture Explained: How It Helps Diagnose NPH
A lumbar puncture, or tap test, helps diagnose normal pressure hydrocephalus (NPH) by draining cerebrospinal fluid and assessing changes in gait.
Emotional Impact of Chronic Pain: Finding Acceptance
Emotional impact of chronic pain can feel overwhelming. Explore ways to heal emotionally, embrace acceptance, and live with renewed purpose.
Dating With Hydrocephalus: Confidence and Boundaries
Learn how to approach dating with hydrocephalus—build confidence, set healthy boundaries, and create relationships grounded in trust and self-love.
Hydrocephalus versus NPH: What’s the Difference?
Many people under 60 think they have NPH—but it’s almost always seen in older adults. Learn the real causes of symptoms and how to get the right diagnosis.
Podcast: Dancing in the Rain: Scott + Angelica’s Story of Hope + Healing
In this heartfelt finale, Scott shares his journey through Angelica’s diagnosis, caregiving, and finding humor, hope, and resilience in the hardest moments.
Shunt Infection: Symptoms, Treatment, and Recovery
Learn how to recognize, treat, and recover from a shunt infection. Understand symptoms, surgery, and infection risks for different shunt types.
Tests to Diagnose Shunt or ETV Failure
Learn how doctors use imaging, fluid tests, and pressure monitoring to diagnose shunt or ETV malfunction in people with hydrocephalus.
Understanding Continuous Lumbar CSF Drainage for NPH
Continuous lumbar CSF drainage is a hospital-based procedure and vital diagnostic tool for normal pressure hydrocephalus (NPH), helping predict response to shunt surgery.
Podcast: Self-Care is Not a Luxury, it’s a Responsibility: Advocacy and Resilience with Pediatric Psychologist Dr. Elizabeth McRae
In this podcast, pediatric psychologist Dr. Elizabeth McRae shares insights on self-care, resilience, and empowering families of medically complex kids.
Podcast: The Search for the Silver Lining: Melissa & Abagail’s Hydrocephalus Story
Melissa joins the podcast to share Abagail’s hydrocephalus journey, reflecting on resilience, advocacy, and finding laughter along the way.
Podcast: Helping Children with Hydrocephalus Thrive with Neuropsychologist Dr. Jennifer Queally
In our podcast, neuropsychologist Dr. Jennifer Queally shares how hydrocephalus impacts learning and offers strategies for kids to thrive.
Podcast: Understanding Hydrocephalus: A Conversation with Pediatric Neurosurgeon Dr. Ramin Eskandari
This podcast explores hydrocephalus, treatment options, warning signs, and expert advice from Dr. Ramin Eskandari to guide patients and families.