I have hydrocephalus

Teen with hydrocephalus

Diagnosed at Birth

Edgar

Story Written by Author/Self

By Amanda Garzon February 15, 2016

Edgar was diagnosed with communicating hydrocephalus as a child.

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Young adult living with hydrocephalus

Diagnosed at Birth

Brianna

Story Written by Author/Self

By Amanda Garzon February 15, 2016

Brianna was born with hydrocephalus and Dandy Walker Syndrome. With aspirations to become a doctor, Brianna refuses to let hydrocephalus run her life.

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Robert, congenital hydrocephalus

Diagnosed at Birth

Robert

Story Written by Author/Self

By Amanda Garzon October 26, 2015

Robert was diagnosed with hydrocephalus at two weeks of age.

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Young adult living with hydrocephalus

Diagnosed at age 18

Melinda

Story Written by Author/Self

By Amanda Garzon September 23, 2015

Melinda was diagnosed with congenital hydrocephalus at the age of 18. In the summer of 2013, her symptoms escalated to having migraines every day, urinary incontinence, vomiting, and severe neck pain.

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Young adult living with hydrocephalus

Diagnosed at Birth

Jessie

Story Written by Author/Self

By Amanda Garzon September 23, 2015

Jessie acquired hydrocephalus from a brain bleed and she has decided to share her story in the hopes that by talking, we can end the negative stigma around differently-abled people.

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Congenital hydrocephalus

Diagnosed at 18 Months

Danielle

Story Written by Author/Self

By admin September 1, 2015

Danielle was diagnosed with hydrocephalus at 18 months old.

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Diane

Diagnosed at Birth

Diane

Story Written by Author/Self

By admin September 1, 2015

Diane was born with hydrocephalus and learned early that perseverance, self-advocacy, and confidence can turn challenges into lifelong strengths.

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Acquired hydrocephalus

Diagnosed at Birth

Matthew

Story Written by Author/Self

By admin September 1, 2015

Matthew acquired hydrocephalus from a brain bleed. Currently, he is a security officer and he is married with 5 kids. He is working and accomplishing things that doctors thought would not be possible.

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Congenital hydrocephalus

Diagnosed at 6 Weeks

Greg

Story Written by Author/Self

By admin September 1, 2015

Greg has congenital hydrocephalus and is a manager at a bank. Hydrocephalus is part of who he is and it changes the way he does certain things, but he does not let the condition define who he is as a person.

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Carly

Diagnosed at Birth

Carly

Story Written by Author/Self

By admin September 1, 2015

Carly was diagnosed with hydrocephalus as a premature infant, has had numerous shunt revisions, and now works in healthcare while living life fully.

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