BEGIN:VCALENDAR VERSION:2.0 PRODID:-//Hydrocephalus Association Store - ECPv6.15.18//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:Hydrocephalus Association Store X-ORIGINAL-URL:https://www.hydroassoc.org X-WR-CALDESC:Events for Hydrocephalus Association Store REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20250309T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20251102T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20260308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20261101T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20270314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20271107T060000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Chicago BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20250309T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20251102T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20260308T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20261101T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20270314T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20271107T070000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20260403T210000 DTEND;TZID=America/New_York:20260403T220000 DTSTAMP:20260401T040319 CREATED:20251229T192937Z LAST-MODIFIED:20260107T213424Z UID:10002887-1775250000-1775253600@www.hydroassoc.org SUMMARY:Virtual Meetup | Adults with Hydrocephalus (Western) DESCRIPTION:This group is designed to bring our Western adult community together to connect with one another\, ask questions and find support from others that are walking or have walked the same path as us. \n**Western Region States: Alaska\, Arizona\, California\, Hawaii\, Idaho\, Nevada\, New Mexico\, Oregon\, Utah\, Washington\, and Wyoming \nDate/Time:\n1st Friday of the month\n9:00 pm Eastern | 8:00 pm Central | 7:00 pm Mountain | 6:00 pm Pacific \nContact:\nKelly \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-adults-with-hydrocephalus-western-3/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2025/12/Adults-with-hydrocephalus.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260404T163000 DTEND;TZID=America/New_York:20260404T173000 DTSTAMP:20260401T040319 CREATED:20251229T200728Z LAST-MODIFIED:20260107T214459Z UID:10002925-1775320200-1775323800@www.hydroassoc.org SUMMARY:Virtual Meetup | Adults with Hydrocephalus in their 30s DESCRIPTION:30ish–Living Life to the Fullest\nJoin us for a chance to connect with others who share similar experiences. This group will be a place to learn\, share\, and support others ages 29–40 navigating the journey of hydrocephalus. We all need to see old friends\, new faces\, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do. \nDate/Time:\n1st Saturday every 3 months\n4:30 pm Eastern | 3:30 pm Central | 2:30 pm Mountain | 1:30 pm Pacific \nContact:\nSara\, Caitlin\, and Janay \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-adults-with-hydrocephalus-in-their-30s-9/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2023/04/adults-in-their-30s.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260405T180000 DTEND;TZID=America/New_York:20260405T193000 DTSTAMP:20260401T040319 CREATED:20251229T171707Z LAST-MODIFIED:20260107T195953Z UID:10002788-1775412000-1775417400@www.hydroassoc.org SUMMARY:Virtual Meetup | Teens are getting together\, Let's Stay Connected! DESCRIPTION:Teens living with Hydrocephalus\nCome meet other teens with the condition! We’ll hang-out\, maybe play an icebreaker game\, talk\, and hopefully make some new friends. \nDate/Time:\n1st Sunday of the month\n6:00 pm Eastern | 5:00 pm Central | 4:00 pm Mountain | 3:00 pm Pacific \nContact:\nMaya\, Spencer\, Bryon\, & Aahna (Teens)\, Liz (CN Leader) \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-teens-are-getting-together-lets-stay-connected-17/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2024/02/TEENS-WITH-HYDROCEPHALUS.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260408T190000 DTEND;TZID=America/New_York:20260408T200000 DTSTAMP:20260401T040319 CREATED:20251229T183613Z LAST-MODIFIED:20260107T203141Z UID:10002842-1775674800-1775678400@www.hydroassoc.org SUMMARY:Encuentro Virtual | Grupo de Habla Hispana! DESCRIPTION:¡Únete a nosotros en nuestro primer encuentro de apoyo virtual!\nLa asociación está aquí para apoyar a todos los afectados por la hidrocefalia\, incluyendo nuestra comunidad de habla hispana! Unámonos para construir un círculo de apoyo para nuestras familias. \nFecha/Hora:\n2to Miércoles cada 3 meses\n7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT \nContacto:\nMaleni \n Registrarse\nNOTA: Esta reunión se llevará a cabo en ZOOM. Solo necesitarás registrarte una vez para acceder a todas las reuniones programadas para el 2026. URL:https://www.hydroassoc.org/event/encuentro-virtual-grupo-de-habla-hispana-2/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2024/02/Spanish.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260409T200000 DTEND;TZID=America/New_York:20260409T210000 DTSTAMP:20260401T040319 CREATED:20251229T185931Z LAST-MODIFIED:20260107T210409Z UID:10002860-1775764800-1775768400@www.hydroassoc.org SUMMARY:Virtual Meetup | State of North Carolina Community Meet-Up DESCRIPTION:This group is designed to bring our North Carolina community together to connect with one another\, ask questions and find support from others that are walking or have walked the same path as us. \nDate/Time:\n2nd Thursday of the month\n8:00 pm Eastern \nContact:\nSarah \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-state-of-north-carolina-community-meet-up-14/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/jpeg:https://www.hydroassoc.org/wp-content/uploads/2025/03/North-Carolina-Monthly-Meet-Up-.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260411T090000 DTEND;TZID=America/New_York:20260411T120000 DTSTAMP:20260401T040319 CREATED:20260121T235929Z LAST-MODIFIED:20260227T191025Z UID:10002965-1775898000-1775908800@www.hydroassoc.org SUMMARY:FREE Hydrocephalus Education Day: Columbus\, OH DESCRIPTION:The Hydrocephalus Association (HA)\, in partnership with Nationwide Children’s Hospital\, is proud to host a free morning designed to deliver education\, support\, and networking opportunities for individuals living with hydrocephalus and their families located in Columbus\, OH. \nJoin us for an Education Day on Saturday\, April 11\, 2026!\nEvent program begins promptly at 9:00 am.\nLearn.\nLearn in a relaxed\, conversational format from pediatric neurosurgeons about hydrocephalus management and from researchers who will share what’s new in hydrocephalus research before the floor is open to address questions you may have. \nShare.\nParents and teens will share their own unique perspectives on growing up with hydrocephalus on our intergenerational panel. Questions from the audience will drive our discussion! \nConnect.\nMeet individuals like yourself living with or caring for someone with hydrocephalus. \nThis event is proudly sponsored by Nationwide Children’s Hospital and the Hydrocephalus Association. \n REGISTER \nSponsored by: \n \n\n  \nSee Other Educational Events > URL:https://www.hydroassoc.org/event/free-hydrocephalus-education-day-columbus/ LOCATION:Nationwide Children’s Hospital\, 555 S. 18th Street\, Stecker Hall (Orange Garage Parking)\, Columbus\, OH\, 43205\, United States CATEGORIES:Educational Events ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2026/01/Columbus-Education-Day-Featured-Image-200-×-150-px-300-x-240-px.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20260411T100000 DTEND;TZID=America/Chicago:20260411T120000 DTSTAMP:20260401T040319 CREATED:20260227T184444Z LAST-MODIFIED:20260319T164819Z UID:10002978-1775901600-1775908800@www.hydroassoc.org SUMMARY:FREE Hydrocephalus Education Day: South Bend\, IN DESCRIPTION:The Hydrocephalus Association (HA) is proud to host a free morning designed to deliver education\, support\, and networking opportunities for individuals living with hydrocephalus and their families located in South Bend\, IN. \nJoin us for an Education Day on Saturday\, April 11\, 2026!\nEvent program begins promptly at 10:00 am.\nLearn.\nLearn in a relaxed\, conversational format from pediatric neurosurgeons about hydrocephalus management and from researchers who will share what’s new in hydrocephalus research before the floor is open to address questions you may have. \nShare.\nParents and teens will share their own unique perspectives on growing up with hydrocephalus on our intergenerational panel. Questions from the audience will drive our discussion! \nConnect.\nMeet individuals like yourself living with or caring for someone with hydrocephalus. \nThis event is proudly sponsored by the Hydrocephalus Association. \n REGISTER \n\n  \nSee Other Educational Events > URL:https://www.hydroassoc.org/event/free-hydrocephalus-education-day-south-bend/ LOCATION:Indiana University Medical School – Notre Dame Campus\, 1234 N. Notre Dame Ave\, South Bend\, IN\, 46617\, United States CATEGORIES:Educational Events ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2026/02/South-Bend-Education-Day-Featured-Image-200-×-150-px-300-x-240-px.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260411T150000 DTEND;TZID=America/New_York:20260411T163000 DTSTAMP:20260401T040319 CREATED:20251229T194451Z LAST-MODIFIED:20260107T221356Z UID:10002902-1775919600-1775925000@www.hydroassoc.org SUMMARY:Virtual Meetup | Adults with Hydrocephalus (Mid-Atlantic & New England) DESCRIPTION:This group is designed to bring our Mid-Atlantic & New England adult community together to connect with one another\, ask questions and find support from others that are walking or have walked the same path as us. \n**Mid-Atlantic & New England Region States: New York\, New Jersey\, Pennsylvania\, Delaware\, Maryland\, Virginia\, West Virginia\, Washington\, D.C.\, Connecticut\, Maine\, Massachusetts\, Rhode Island\, New Hampshire\, and Vermont \nDate/Time:\n2nd & 4th Saturday of the month\n3:00 pm Eastern | 2:00 pm Central | 1:00 pm Mountain | 12:00 pm Pacific \nContact:\nSierra\, Caitlin\, and Sara \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-adults-with-hydrocephalus-mid-atlantic-new-england-7/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2025/12/Adults-with-hydrocephalus.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260411T190000 DTEND;TZID=America/New_York:20260411T203000 DTSTAMP:20260401T040319 CREATED:20251229T201727Z LAST-MODIFIED:20251229T201727Z UID:10002934-1775934000-1775939400@www.hydroassoc.org SUMMARY:Virtual Meetup | Young Adults in their 20s DESCRIPTION:Adults in their 20s\nThis group is designed to bring us together\, connect with one another\, ask questions and find support from others that are walking or have walked the same path as us. \nDate/Time:\n2nd & 4th Saturday of the month\n7:00 pm Eastern | 6:00 pm Central | 5:00 pm Mountain | 4:00 pm Pacific \nContact:\nPedro\, Sarah\, Mackenzie\, and Stacy \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-young-adults-in-their-20s-35/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2024/02/young-adults-in-their-20s.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260412T190000 DTEND;TZID=America/New_York:20260412T200000 DTSTAMP:20260401T040319 CREATED:20250828T203917Z LAST-MODIFIED:20250828T203917Z UID:10002765-1776020400-1776024000@www.hydroassoc.org SUMMARY:Virtual Meetup | Middle School Crew Chat! DESCRIPTION:Middle School Youth living with Hydrocephalus\nThis group is designed for tweens and teens between the ages of 11 and 14 who are dealing with the challenges of middle school and hydrocephalus. Join us in this safe space to connect with your peers\, build relationships\, and receive encouragement. \nDate/Time:\n2nd Sunday of the month\n7:00 pm Eastern | 6:00 pm Central | 5:00 pm Mountain | 4:00 pm Pacific \nContact:\nKatelyn & Camille (Middle Schoolers)\, Sierra Smith\, HA Staff \n Register\nNOTE: This meeting occurs on ZOOM and meet only during the academic calendar year (August- May). You will only be required to register once to receive access to all meetings held from August 2025- May 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-middle-school-crew-chat-13/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2024/11/Middle-School-Youth-1.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260415T180000 DTEND;TZID=America/New_York:20260415T193000 DTSTAMP:20260401T040319 CREATED:20251229T180932Z LAST-MODIFIED:20260107T204007Z UID:10002824-1776276000-1776281400@www.hydroassoc.org SUMMARY:Virtual Meetup | NPH Meet-up\, Join us for a conversation! DESCRIPTION:NPH Community Network \nJoin us for an NPH Community Network get together! Join us for an NPH Community Network get together! Our meetings are designed to encourage participants to interact with others managing life with NPH. We welcome all those living with NPH throughout the USA! Let’s build this network! \nDate/Time:\n3rd Wednesday of the month\n6:00 pm Eastern | 5:00 pm Central | 4:00 pm Mountain | 3:00 pm Pacific \nContact:\nGary \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-nph-meet-up-join-us-for-a-conversation-17/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2024/02/NPH.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260416T150000 DTEND;TZID=America/New_York:20260416T160000 DTSTAMP:20260401T040319 CREATED:20260323T184534Z LAST-MODIFIED:20260323T231646Z UID:10002988-1776351600-1776355200@www.hydroassoc.org SUMMARY:Virtual Meetup | Homeschool Connections: Supporting Every Learner\, Every Family DESCRIPTION:Join a welcoming homeschool community where we will have the opportunity to share information while still honoring the unique needs of each child and family. Together\, we’ll explore meaningful topics that impact your child’s learning and your experience as a parent-educator.\nDate/Time:\n3rd Thursday\, Quarterly\n3:00 pm Eastern \nContact:\nBrittany and Heather \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-homeschool-connections-supporting-every-learner-every-family/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2026/03/Homeschool.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260416T190000 DTEND;TZID=America/New_York:20260416T200000 DTSTAMP:20260401T040319 CREATED:20251229T191051Z LAST-MODIFIED:20260107T211255Z UID:10002872-1776366000-1776369600@www.hydroassoc.org SUMMARY:Virtual Meetup | Supportive Families Embracing Disability Journeys DESCRIPTION:Welcome to a supportive haven for parents! We embrace all parents navigating the complexities of hydrocephalus and intellectual and developmental disabilities in their adult children. Our inclusive community recognizes the diverse ways hydrocephalus affects our loved ones. If you’re supporting an adult child with intellectual disability/learning challenges\, autism\, and/or physical disability\, you’re not alone. Join fellow parents on a shared journey to connect\, discuss\, and find solace in understanding each other’s experiences as caregivers\, advocates\, and individuals. \nDate/Time:\n3rd Thursday every month\n7:00 pm Eastern | 6:00 pm Central | 5:00 pm Mountain | 4:00 pm Pacific \nContact:\nJackie and Susan \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-supportive-families-embracing-disability-journeys-17/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2024/02/Parents-Supporting-Parents-of-Adult-Children-with-IDD.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20260417 DTEND;VALUE=DATE:20260418 DTSTAMP:20260401T040319 CREATED:20250919T134247Z LAST-MODIFIED:20260317T160015Z UID:10002780-1776384000-1776470399@www.hydroassoc.org SUMMARY:Eat for a Cure at Panda Express DESCRIPTION:Invite your friends\, family\, and co-workers to support the Hydrocephalus Association by enjoying your favorite Panda Express meal on Friday\, April 17\, 2026! Every bite makes a difference—when you place an order online or through the Panda Express app for pickup or delivery\, simply enter code 9012312 at checkout\, and 28% of your purchase will benefit HA. \nIt’s an easy (and delicious) way to give back. Whether it’s lunch with co-workers\, dinner with family\, or a quick meal on the go\, your order helps us fund life-changing research\, raise awareness\, and support the hydrocephalus community nationwide. \nSpread the word\, share the code\, and join us in turning takeout into impact! \n\n Learn More URL:https://www.hydroassoc.org/event/eat-for-a-cure-at-panda-express/ LOCATION:ME CATEGORIES:Other Events ATTACH;FMTTYPE=image/jpeg:https://www.hydroassoc.org/wp-content/uploads/2025/09/Panda-Express.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260418T120000 DTEND;TZID=America/New_York:20260418T130000 DTSTAMP:20260401T040319 CREATED:20251229T203529Z LAST-MODIFIED:20260107T222630Z UID:10002955-1776513600-1776517200@www.hydroassoc.org SUMMARY:Virtual Meetup | Sharing the Journey Women's Group Age 40+ DESCRIPTION:Empowering Middle-Age Women Living with Hydrocephalus!\nHydrocephalus is a complex and unpredictable condition that requires lifelong management. For women in particular\, it can impact us emotionally\, socially\, physically\, relationally\, and professionally in combination with managing the day-to-day challenges of living with a chronic condition. Do you have questions about how hydrocephalus impacts you as you age? Join us for a chance to connect with other women who share similar experiences. This group will be a place to learn\, share\, and support other women\, ages 40 and above\, navigating the journey of hydrocephalus. \nDate/Time:\n3rd Saturday of the month\n12:00 pm Eastern | 11:00 am Central | 10:00 am Mountain | 9:00 am Pacific \nContact:\nPatty and Kara \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-sharing-the-journey-womens-group-age-40-16/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2025/12/WOMEN-WITH-HYDRO-40.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260421T143000 DTEND;TZID=America/New_York:20260421T153000 DTSTAMP:20260401T040319 CREATED:20251229T182148Z LAST-MODIFIED:20260107T202858Z UID:10002834-1776781800-1776785400@www.hydroassoc.org SUMMARY:Virtual Meetup | L1CAM Family and Relatives DESCRIPTION:Finding our way with L1CAM! This group is designed to be a source of encouragement\, support\, and share helpful resources. Our space to learn more about the impacts of the L1CAM syndrome on families within our community. \nDate/Time:\n3rd Tuesday every 3 months\n2:30 pm Eastern | 1:30 pm Central | 12:30 pm Mountain | 11:30 pm Pacific \nContact:\nAlison \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-l1cam-family-and-relatives-8/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2023/04/l1cam-family-and-relatives.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260421T193000 DTEND;TZID=America/New_York:20260421T203000 DTSTAMP:20260401T040319 CREATED:20251229T183019Z LAST-MODIFIED:20260107T201602Z UID:10002838-1776799800-1776803400@www.hydroassoc.org SUMMARY:Virtual Meetup | Building Bonds- Parents of Young Adults Living with Hydrocephalus DESCRIPTION:This parent-to-parent group is designed to provide a safe and welcoming space for parents with children ages 19- 29 transitioning into the adult world. We will gather together to share ideas\, celebrate successes\, and navigate the challenges of hydrocephalus in a supportive environment. \nDate/Time:\n3rd Tuesday of the month\n7:30 pm Eastern | 6:30 pm Central | 5:30 pm Mountain | 4:30 pm Pacific \nContact:\nTiffany \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-building-bonds-parents-of-young-adults-living-with-hydrocephalus-14/ LOCATION:https://www.hydroassoc.org/event/virtual-meetup-building-bonds-parents-of-young-adults-living-with-hydrocephalus-14/ CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2024/03/Parents-of-young-adults-ages-19-29.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260422T190000 DTEND;TZID=America/New_York:20260422T200000 DTSTAMP:20260401T040319 CREATED:20251229T184802Z LAST-MODIFIED:20260107T205028Z UID:10002849-1776884400-1776888000@www.hydroassoc.org SUMMARY:Virtual Meetup | Breaking Barriers Men's Talk! DESCRIPTION:Empowering Men Living with Hydrocephalus!\nJoin us for meaningful conversation that will help to breakdown the stigma of common issues faced by men living with this unpredictable chronic neurological condition. We will have fun talking about men’s stuff with other men! \nDate/Time:\n4th Wednesday of the month\n7:00 pm Eastern | 6:00 pm Central | 5:00 pm Mountain | 4:00 pm Pacific \nContact:\nAlex and Patrick \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-breaking-barriers-mens-talk-18/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2024/02/Mens-Talk.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260423T150000 DTEND;TZID=America/New_York:20260423T160000 DTSTAMP:20260401T040319 CREATED:20251229T192202Z LAST-MODIFIED:20260107T211850Z UID:10002882-1776956400-1776960000@www.hydroassoc.org SUMMARY:Virtual Meetup | Yoga on the Brain DESCRIPTION:Partnership with SOOM Healing Concepts\nThis support group is meant to be a space where yoga therapy practices are offered as a tool and platform for supporting personal symptoms of hydrocephalus and neurological conditions. While yoga therapy interventions provided by the certified yoga therapist and hydro warrior are offered via an evidence-based and trauma informed lens\, please consult your doctor and remember that Yoga Therapy is not a replacement for medicine or medical treatment. \nDate/Time:\n4th Thursday every 3 months\n3:00 pm Eastern | 2:00 pm Central | 1:00 pm Mountain | 12:00 pm Pacific \nContact:\nLian\, Yoga Therapist \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-yoga-on-the-brain-5/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2025/04/Yoga-on-the-Brain-wLian.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260423T213000 DTEND;TZID=America/New_York:20260423T223000 DTSTAMP:20260401T040319 CREATED:20260323T183415Z LAST-MODIFIED:20260323T231852Z UID:10002985-1776979800-1776983400@www.hydroassoc.org SUMMARY:Virtual Meetup | State of Nevada Community Meet-Up\, Rooted In Support DESCRIPTION:This is a welcoming space designed for parents and caregivers navigating the complexities of a neurological condition. Together\, we’ll explore ways to find meaningful support in a community that understands. Conversations will also focus on sharing tips\, resources\, and real-life experiences to help you advocate with confidence. \nDate/Time:\n4th Thursday\, Quarterly\n9:30 pm Eastern \nContact:\nGigi and Jennifer \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-state-of-nevada-community-meet-up-rooted-in-support/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2026/03/State-of-Nevada.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260425T150000 DTEND;TZID=America/New_York:20260425T163000 DTSTAMP:20260401T040319 CREATED:20251229T194535Z LAST-MODIFIED:20260107T221313Z UID:10002903-1777129200-1777134600@www.hydroassoc.org SUMMARY:Virtual Meetup | Adults with Hydrocephalus (Mid-Atlantic & New England) DESCRIPTION:This group is designed to bring our Mid-Atlantic & New England adult community together to connect with one another\, ask questions and find support from others that are walking or have walked the same path as us. \n**Mid-Atlantic & New England Region States: New York\, New Jersey\, Pennsylvania\, Delaware\, Maryland\, Virginia\, West Virginia\, Washington\, D.C.\, Connecticut\, Maine\, Massachusetts\, Rhode Island\, New Hampshire\, and Vermont \nDate/Time:\n2nd & 4th Saturday of the month\n3:00 pm Eastern | 2:00 pm Central | 1:00 pm Mountain | 12:00 pm Pacific \nContact:\nSierra\, Caitlin\, and Sara \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-adults-with-hydrocephalus-mid-atlantic-new-england-8/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2025/12/Adults-with-hydrocephalus.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260426T163000 DTEND;TZID=America/New_York:20260426T173000 DTSTAMP:20260401T040319 CREATED:20251229T173730Z LAST-MODIFIED:20260107T200910Z UID:10002800-1777221000-1777224600@www.hydroassoc.org SUMMARY:Virtual Meetup | Adults with Hydrocephalus (Southern) DESCRIPTION:This group is designed to bring our Southern adult community together to connect with one another\, ask questions and find support from others that are walking or have walked the same path as us. \n**Southern Region States: Alabama\, Arkansas\, Florida\, Georgia\, Kentucky\, Louisiana\, Mississippi\, North Carolina\, South Carolina\, Tennessee\, and Oklahoma \nDate/Time:\n4th Sunday of the month\n4:30 pm Eastern | 3:30 pm Central | 2:30 pm Mountain | 1:30 pm Pacific \nContact:\nDylan\, Jessica\, and Lillian \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-adults-with-hydrocephalus-southern-4/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2025/12/Adults-with-hydrocephalus.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260427T200000 DTEND;TZID=America/New_York:20260427T210000 DTSTAMP:20260401T040319 CREATED:20251229T175433Z LAST-MODIFIED:20260107T202502Z UID:10002812-1777320000-1777323600@www.hydroassoc.org SUMMARY:Virtual Meetup | Orange County\, CA NPH Support Group Meeting DESCRIPTION:NPH Community Network \nIn partnership with the Hydrocephalus Association\, the Orange County California virtual NPH support group is led by Dr. Jefferson Chen\, Director of NeuroTrauma and Vice-Chair of UC Irvine Department of Neurological Surgery. This group has been created to share additional resources\, information\, and support offered to individuals and families affected by NPH. \nDate/Time:\n4th Monday of the month\n8:00 pm Eastern | 7:00 pm Central | 6:00 pm Mountain | 5:00 pm Pacific \nContact:\nDr. Jefferson Chen Neurosurgery Team \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-orange-county-ca-nph-support-group-meeting-16/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2024/12/NPH-Website.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260501T210000 DTEND;TZID=America/New_York:20260501T220000 DTSTAMP:20260401T040319 CREATED:20251229T193016Z LAST-MODIFIED:20260107T212821Z UID:10002888-1777669200-1777672800@www.hydroassoc.org SUMMARY:Virtual Meetup | Adults with Hydrocephalus (Western) DESCRIPTION:This group is designed to bring our Western adult community together to connect with one another\, ask questions and find support from others that are walking or have walked the same path as us. \n**Western Region States: Alaska\, Arizona\, California\, Hawaii\, Idaho\, Nevada\, New Mexico\, Oregon\, Utah\, Washington\, and Wyoming \nDate/Time:\n1st Friday of the month\n9:00 pm Eastern | 8:00 pm Central | 7:00 pm Mountain | 6:00 pm Pacific \nContact:\nKelly \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-adults-with-hydrocephalus-western-4/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2025/12/Adults-with-hydrocephalus.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20260502T090000 DTEND;TZID=America/Chicago:20260502T120000 DTSTAMP:20260401T040319 CREATED:20260316T165750Z LAST-MODIFIED:20260316T211204Z UID:10002980-1777712400-1777723200@www.hydroassoc.org SUMMARY:FREE Hydrocephalus Education Day: Chicago\, IL DESCRIPTION:The Hydrocephalus Association (HA) is proud to host a free morning designed to deliver education\, support\, and networking opportunities for individuals living with hydrocephalus and their families located in Chicago\, IL. \nJoin us for an Education Day on Saturday\, May 2\, 2026!\nEvent program begins promptly at 9:00 am.\nLearn.\nIn a conversational format\, pediatric neurosurgeon Dr. Arthur DiPatri will provide a brief overview of hydrocephalus management. While other guest speakers will share what’s new in hydrocephalus research. \nShare.\nParents and teens will share their own unique perspectives on growing up with hydrocephalus on our intergenerational panel. Questions from the audience will drive our discussion! \nConnect.\nNetwork and meet other individuals living with or caring for someone with hydrocephalus. \nThis event is proudly sponsored by the Hydrocephalus Association. \n REGISTER \nSponsored by: \n \n  \n\n  \nSee Other Educational Events > URL:https://www.hydroassoc.org/event/chicagoeducationday/ LOCATION:Portal Innovations at Fulton Labs\, 400 N Aberdeen St\, Ste 900\, Chicago\, IL\, 60642\, United States CATEGORIES:Educational Events ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2026/03/Chicago-Education-Day-Featured-Image-200-×-150-px-300-x-240-px.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260503T180000 DTEND;TZID=America/New_York:20260503T193000 DTSTAMP:20260401T040319 CREATED:20251229T171817Z LAST-MODIFIED:20260107T195908Z UID:10002789-1777831200-1777836600@www.hydroassoc.org SUMMARY:Virtual Meetup | Teens are getting together\, Let's Stay Connected! DESCRIPTION:Teens living with Hydrocephalus\nCome meet other teens with the condition! We’ll hang-out\, maybe play an icebreaker game\, talk\, and hopefully make some new friends. \nDate/Time:\n1st Sunday of the month\n6:00 pm Eastern | 5:00 pm Central | 4:00 pm Mountain | 3:00 pm Pacific \nContact:\nMaya\, Spencer\, Bryon\, & Aahna (Teens)\, Liz (CN Leader) \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-teens-are-getting-together-lets-stay-connected-18/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2024/02/TEENS-WITH-HYDROCEPHALUS.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260509T150000 DTEND;TZID=America/New_York:20260509T163000 DTSTAMP:20260401T040319 CREATED:20251229T194615Z LAST-MODIFIED:20260107T221225Z UID:10002904-1778338800-1778344200@www.hydroassoc.org SUMMARY:Virtual Meetup | Adults with Hydrocephalus (Mid-Atlantic & New England) DESCRIPTION:This group is designed to bring our Mid-Atlantic & New England adult community together to connect with one another\, ask questions and find support from others that are walking or have walked the same path as us. \n**Mid-Atlantic & New England Region States: New York\, New Jersey\, Pennsylvania\, Delaware\, Maryland\, Virginia\, West Virginia\, Washington\, D.C.\, Connecticut\, Maine\, Massachusetts\, Rhode Island\, New Hampshire\, and Vermont \nDate/Time:\n2nd & 4th Saturday of the month\n3:00 pm Eastern | 2:00 pm Central | 1:00 pm Mountain | 12:00 pm Pacific \nContact:\nSierra\, Caitlin\, and Sara \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-adults-with-hydrocephalus-mid-atlantic-new-england-9/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2025/12/Adults-with-hydrocephalus.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260510T190000 DTEND;TZID=America/New_York:20260510T200000 DTSTAMP:20260401T040319 CREATED:20250828T204017Z LAST-MODIFIED:20250828T204017Z UID:10002766-1778439600-1778443200@www.hydroassoc.org SUMMARY:Virtual Meetup | Middle School Crew Chat! DESCRIPTION:Middle School Youth living with Hydrocephalus\nThis group is designed for tweens and teens between the ages of 11 and 14 who are dealing with the challenges of middle school and hydrocephalus. Join us in this safe space to connect with your peers\, build relationships\, and receive encouragement. \nDate/Time:\n2nd Sunday of the month\n7:00 pm Eastern | 6:00 pm Central | 5:00 pm Mountain | 4:00 pm Pacific \nContact:\nKatelyn & Camille (Middle Schoolers)\, Sierra Smith\, HA Staff \n Register\nNOTE: This meeting occurs on ZOOM and meet only during the academic calendar year (August- May). You will only be required to register once to receive access to all meetings held from August 2025- May 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-middle-school-crew-chat-14/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2024/11/Middle-School-Youth-1.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260514T200000 DTEND;TZID=America/New_York:20260514T210000 DTSTAMP:20260401T040319 CREATED:20251229T190014Z LAST-MODIFIED:20260107T210302Z UID:10002861-1778788800-1778792400@www.hydroassoc.org SUMMARY:Virtual Meetup | State of North Carolina Community Meet-Up DESCRIPTION:This group is designed to bring our North Carolina community together to connect with one another\, ask questions and find support from others that are walking or have walked the same path as us. \nDate/Time:\n2nd Thursday of the month\n8:00 pm Eastern \nContact:\nSarah \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-state-of-north-carolina-community-meet-up-15/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/jpeg:https://www.hydroassoc.org/wp-content/uploads/2025/03/North-Carolina-Monthly-Meet-Up-.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260516T120000 DTEND;TZID=America/New_York:20260516T130000 DTSTAMP:20260401T040319 CREATED:20251229T203613Z LAST-MODIFIED:20260107T222557Z UID:10002956-1778932800-1778936400@www.hydroassoc.org SUMMARY:Virtual Meetup | Sharing the Journey Women's Group Age 40+ DESCRIPTION:Empowering Middle-Age Women Living with Hydrocephalus!\nHydrocephalus is a complex and unpredictable condition that requires lifelong management. For women in particular\, it can impact us emotionally\, socially\, physically\, relationally\, and professionally in combination with managing the day-to-day challenges of living with a chronic condition. Do you have questions about how hydrocephalus impacts you as you age? Join us for a chance to connect with other women who share similar experiences. This group will be a place to learn\, share\, and support other women\, ages 40 and above\, navigating the journey of hydrocephalus. \nDate/Time:\n3rd Saturday of the month\n12:00 pm Eastern | 11:00 am Central | 10:00 am Mountain | 9:00 am Pacific \nContact:\nPatty and Kara \n Register\nNOTE: This meeting occurs on ZOOM. You will only be required to register once to receive access to all meetings held in 2026. URL:https://www.hydroassoc.org/event/virtual-meetup-sharing-the-journey-womens-group-age-40-17/ LOCATION:ME CATEGORIES:Community Networks ATTACH;FMTTYPE=image/png:https://www.hydroassoc.org/wp-content/uploads/2025/12/WOMEN-WITH-HYDRO-40.png END:VEVENT END:VCALENDAR