{"id":287,"date":"2024-07-26T08:10:13","date_gmt":"2024-07-26T12:10:13","guid":{"rendered":"https:\/\/www.hydroassoc.org\/?page_id=287"},"modified":"2025-10-14T12:09:15","modified_gmt":"2025-10-14T16:09:15","slug":"get-involved-in-research","status":"publish","type":"page","link":"https:\/\/www.hydroassoc.org\/get-involved-in-research\/","title":{"rendered":"Get Involved in Research"},"content":{"rendered":"\n<h1>\n\t\t\tGet Involved In Research\t<\/h1>\n<h3>\n\t\t\tResearchers may have the scientific expertise, but they need input from people living with hydrocephalus in order to ask the right questions and develop treatments that will benefit our entire community.\t<\/h3>\n\t<h2>Be the First to Know About Research Opportunities<\/h2>\n<p>Want to help advance hydrocephalus research?<\/p>\n<p><strong>Sign up to:<\/strong><\/p>\n<ul>\n<li>Be notified about research studies and trials recruiting participants<\/li>\n<li>Learn about surveys, registries, and other opportunities to share your experience<\/li>\n<li>Stay informed on the latest findings and how they impact the hydrocephalus community<\/li>\n<\/ul>\n<p>Your information will remain confidential and will only be used to contact you about relevant research and participation opportunities.<\/p>\n<p><a href=\"https:\/\/support.hydroassoc.org\/site\/Survey?ACTION_REQUIRED=URI_ACTION_USER_REQUESTS&amp;SURVEY_ID=2340\" target=\"_blank\" rel=\"noopener\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Sign Up \u2192<\/a><\/p>\n<hr \/>\n\t<h2><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.hydroassoc.org\/wp-content\/uploads\/2025\/10\/HAPPIER.png\" alt=\"\" width=\"159\" height=\"159\">Join Our Hydrocephalus Patient Registry!<\/h2>\n<p>The HA Patient Powered Interactive Engagement Registry (HAPPIER) is an online database created to bring the patient perspective to hydrocephalus research. HAPPIER is collecting information on the treatment and symptoms, health, and quality of life of people living with hydrocephalus.<\/p>\n<p>HAPPIER is a part of the larger HA Research Network that is working together to improve outcomes, find new treatments, and develop ways to prevent hydrocephalus all together. With the HA Network for Discovery Science (HANDS), Hydrocephalus Clinical Research Network (HCRN), and the Adult HCRN (AHCRN), HAPPIER will help accelerate hydrocephalus research by providing patient-generated and patient-centered data to the research community.<\/p>\n<p><a href=\"https:\/\/www.hydroassoc.org\/join-the-hydrocephalus-patient-registry\/\" target=\"_blank\" rel=\"noopener\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Join Now \u2192<\/a><\/p>\n<hr \/>\n<h2><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.hydroassoc.org\/wp-content\/uploads\/2025\/10\/Clinical-Trial.png\" alt=\"\" width=\"160\" height=\"160\">Participate in a Clinical Trial<\/h2>\n<p>Enrolling in clinical research trials is one way our community can become active participants in the quest to improve outcomes and find a cure for hydrocephalus.<\/p>\n<p><a href=\"\/learn-more-about-ongoing-studies\/\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Learn more about ongoing trials \u2192<\/a><\/p>\n<hr \/>\n<h2><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.hydroassoc.org\/wp-content\/uploads\/2025\/10\/Brain-Donation.png\" alt=\"\" width=\"160\" height=\"160\">Interested in Brain Donation?<\/h2>\nDonating your brain for research is a very personal decision, and it is important to share your decision with family and loved ones. However, it can be difficult to find resources that answer common questions related to brain donation and even more difficult to navigate the process for ensuring your wishes are met.<br \/>\nWe have put together some resources that can help you make this important decision.\n<p><a href=\"\/interested-in-brain-donation\/\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Read more \u2192<\/a><\/p>\n<hr \/>\n\n\r\n            <div id=\"daexthefup-container\"\r\n                 class=\"daexthefup-container daexthefup-layout-stacked daexthefup-alignment-center\"\r\n                 data-post-id=\"287\">\r\n\r\n                <div class=\"daexthefup-feedback\">\r\n                    <div class=\"daexthefup-text\">\r\n                        <h3 class=\"daexthefup-title\">Was this resource helpful?<\/h3>\r\n                    <\/div>\r\n                    <div class=\"daexthefup-buttons-container\">\r\n                        <div class=\"daexthefup-buttons\">\r\n\t\t\t\t\t\t\t\r\n            <div class=\"daexthefup-yes daexthefup-button daexthefup-button-type-text\" data-value=\"1\">\r\n                <div class=\"daexthefup-button-text\">Yes<\/div>\r\n            <\/div>\r\n\r\n\t\t\t\t\t\t\t\t\t\t\r\n            <div class=\"daexthefup-no daexthefup-button daexthefup-button-type-text\" data-value=\"0\">\r\n                <div class=\"daexthefup-button-text\">No<\/div>\r\n            <\/div>\r\n\r\n\t\t\t                        <\/div>\r\n                    <\/div>\r\n                <\/div>\r\n\r\n                <div class=\"daexthefup-comment\">\r\n                    <div class=\"daexthefup-comment-top-container\">\r\n                        <label id=\"daexthefup-comment-label\" class=\"daexthefup-comment-label\"><\/label>\r\n\t\t\t\t\t\t                            <div class=\"daexthefup-comment-character-counter-container\">\r\n                                <div id=\"daexthefup-comment-character-counter-number\"\r\n                                     class=\"daexthefup-comment-character-counter-number\"><\/div>\r\n                                <div class=\"daexthefup-comment-character-counter-text\"><\/div>\r\n                            <\/div>\r\n\t\t\t\t\t\t                    <\/div>\r\n                    <textarea id=\"daexthefup-comment-textarea\" class=\"daexthefup-comment-textarea\"\r\n                              placeholder=\"Type your message\"\r\n                              maxlength=\"400\"><\/textarea>\r\n                    <div class=\"daexthefup-comment-buttons-container\">\r\n                        <button class=\"daexthefup-comment-submit daexthefup-button\">Submit<\/button>\r\n                        <button class=\"daexthefup-comment-cancel daexthefup-button\">Cancel<\/button>\r\n                    <\/div>\r\n                <\/div>\r\n\r\n                <div class=\"daexthefup-successful-submission-text\">Thanks for your feedback!<\/div>\r\n\r\n            <\/div>\r\n\r\n\t\t\t","protected":false},"excerpt":{"rendered":"<p>Get Involved In Research Researchers may have the scientific expertise, but they need input from&hellip;<\/p>\n","protected":false},"author":6,"featured_media":32317,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_helpful_pro_status":1,"_searchwp_excluded":"","inline_featured_image":false,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[1207],"tags":[],"folder":[13],"class_list":["post-287","page","type-page","status-publish","has-post-thumbnail","hentry","category-resources"],"acf":[],"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/pages\/287","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/comments?post=287"}],"version-history":[{"count":0,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/pages\/287\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/media\/32317"}],"wp:attachment":[{"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/media?parent=287"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/categories?post=287"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/tags?post=287"},{"taxonomy":"folder","embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/folder?post=287"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}