{"id":34976,"date":"2024-10-01T12:19:38","date_gmt":"2024-10-01T16:19:38","guid":{"rendered":"https:\/\/www.hydroassoc.org\/?page_id=34976"},"modified":"2025-11-19T10:32:16","modified_gmt":"2025-11-19T15:32:16","slug":"parent-hydrocephalus-resources","status":"publish","type":"page","link":"https:\/\/www.hydroassoc.org\/parent-hydrocephalus-resources\/","title":{"rendered":"Resources for Parents Caring for a Child with Hydrocephalus"},"content":{"rendered":"\n<h3>\n\t\t\tResources\t<\/h3>\n<h1>\n\t\t\tFor Parents Caring for a Child <br \/> with Hydrocephalus\t<\/h1>\n<h2>\n\t\t\tKnow You&#8217;re Not Alone\t<\/h2>\n\t<h3>We&#8217;re here to help your child live their best life. As your child grows, our resources grow with you.<\/h3>\n\n<h3>\n\t\t\tFind essential tools and resources to help you advocate for your child, make informed decisions, and manage your child&#8217;s daily needs.\t<\/h3>\n\t<p>Hearing the words, &#8220;your child has hydrocephalus,&#8221; can feel overwhelming, but it&#8217;s important to know that <strong>many children with hydrocephalus go on to live full, meaningful lives.<\/strong> While the journey may be different than expected, there is hope, and with proper care and support, your child can thrive.<\/p>\n<p><strong>Hydrocephalus requires lifelong management<\/strong>, and as a parent, you will grow stronger as you learn to navigate this condition. Education and planning are key, and together, you can help your child live their best life.<\/p>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/www.hydroassoc.org\/wp-content\/uploads\/2024\/09\/As-your-child-grows.png\" alt=\"As your child grows\" itemprop=\"image\" height=\"399\" width=\"600\" title=\"As your child grows\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/>\n<h3>\n\t\t\tAs Your Child Grows\t<\/h3>\n\t<p>Understanding and navigating your child&#8217;s social development, daycares, cognitive development, video series from experts, and legal rights.<\/p>\n\t\t\t<a href=\"\/as-your-child-grows\/\" title=\"Click Here\" target=\"_self\"   role=\"button\" aria-label=\"View Guide &amp; Resources\">\n\t\t\t\t\t\t\tView Guide &amp; Resources\n\t\t<\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/www.hydroassoc.org\/wp-content\/uploads\/2024\/09\/medical-care.png\" alt=\"medical care\" itemprop=\"image\" height=\"399\" width=\"600\" title=\"medical care\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/>\n<h3>\n\t\t\tNavigating Medical Care\t<\/h3>\n\t<p>Choosing your doctor, medical team, and specialists, questions to ask your doctor, and additional resources to help you with the process.<\/p>\n\t\t\t<a href=\"\/navigating-the-system\/\" title=\"Click Here\" target=\"_self\"   role=\"button\" aria-label=\"View Guide &amp; Resources\">\n\t\t\t\t\t\t\tView Guide &amp; Resources\n\t\t<\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/www.hydroassoc.org\/wp-content\/uploads\/2024\/09\/related-health-conditions.png\" alt=\"related health conditions\" itemprop=\"image\" height=\"399\" width=\"600\" title=\"related health conditions\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/>\n<h3>\n\t\t\tRelated Health Conditions\t<\/h3>\n\t<p>Managing additional health problems including, but not limited to, headaches, chronic pain, and epilepsy.<\/p>\n\t\t\t<a href=\"\/related-health-conditions\/\" title=\"Click Here\" target=\"_self\"   role=\"button\" aria-label=\"View Guide &amp; Resources\">\n\t\t\t\t\t\t\tView Guide &amp; Resources\n\t\t<\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/www.hydroassoc.org\/wp-content\/uploads\/2024\/09\/20.png\" alt=\"20\" itemprop=\"image\" height=\"399\" width=\"600\" title=\"20\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/>\n<h3>\n\t\t\tSchool Guides for Parents &#038; Teachers\t<\/h3>\n\t<p>Resources for teachers, checklists for parents, videos from our experts, ups and down of school, and more.<\/p>\n\t\t\t<a href=\"\/school\/\" title=\"Click Here\" target=\"_self\"   role=\"button\" aria-label=\"View Guide &amp; Resources\">\n\t\t\t\t\t\t\tView Guide &amp; Resources\n\t\t<\/a>\n\t<h2><strong><b>A Helpful Companion for Learning at Home<\/b><br \/>\n<\/strong><\/h2>\n<p>Parents often look for tools that make hydrocephalus easier to talk about. My Hydro Bear has a shunt, helping children visualize treatment, ask questions, and gain confidence. It&#8217;s a supportive resource for everyday conversations and medical experiences.<\/p>\n<p>You can order My Hydro Bear to help your child feel informed and supported.<\/p>\n<p><a href=\"https:\/\/secure2.convio.net\/hydro\/site\/Ecommerce\/898731866?store_id=1221&amp;product_id=1601&amp;VIEW_PRODUCT=true&amp;_gl=1*6um82n*_gcl_aw*R0NMLjE3NTgyOTUxMjUuQ2owS0NRandfclBHQmhDYkFSSXNBQmpxOWNmRXp4WlJHOHp4X21xUnk3MTRmOUxTVVYySkg2YmJTem1MSWIyaVpxdE40SUZOMkxwZlBMVWFBck10RUFMd193Y0I.*_gcl_au*MTU3MTM1NzgyNS4xNzYzMDU2MjUz*_ga*NTc5NzI4Njk3LjE3MzIwMzc0NTg.*_ga_5RG9SRGZ6V*czE3NjM0OTk0MDkkbzE5MiRnMSR0MTc2MzQ5OTQ2NyRqMzkkbDAkaDA.\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\" target=\"_blank\" rel=\"noopener\">Order My Hydro Bear \u2192<\/a><\/p>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/www.hydroassoc.org\/wp-content\/uploads\/2025\/02\/mia.png\" alt=\"mia\" itemprop=\"image\" height=\"300\" width=\"300\" title=\"mia\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/>\n<h2>\n\t\t\tTop Resources\t<\/h2>\n<h3>\n\t\t\tOur association offers trusted, high-quality resources to empower your child.\t<\/h3>\n\t<p><a href=\"https:\/\/www.hydroassoc.org\/hydroassist\/\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Mobile App: HydroAssist<sup>\u00ae<\/sup> <strong>\u2192<\/strong><\/a><\/p>\n<p><a href=\"https:\/\/www.hydroassoc.org\/resources\/\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Free Downloadable Toolkits <strong>\u2192<\/strong><\/a><\/p>\n<p><a href=\"https:\/\/www.hydroassoc.org\/ask-the-expert-video-series\/\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Video Series: Ask the Expert <strong>\u2192<\/strong><\/a><\/p>\n\t<p><a href=\"https:\/\/www.hydroassoc.org\/find-a-community-network\/\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Online Support Groups <strong>\u2192<\/strong><\/a><\/p>\n<p><a href=\"https:\/\/www.hydroassoc.org\/hydrocephalusconnect-peer-support\/\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Peer Support: HydrocephalusCONNECT <strong>\u2192<\/strong><\/a><\/p>\n<p><a href=\"https:\/\/www.hydroassoc.org\/penpalprogram\/\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Pen Pal Program <strong>\u2192<\/strong><\/a><\/p>\n<p><a href=\"https:\/\/secure2.convio.net\/hydro\/site\/Ecommerce\/898731866?store_id=1221&amp;product_id=1601&amp;VIEW_PRODUCT=true\" target=\"_blank\" rel=\"noopener\">My Hydro Bear <strong>\u2192<\/strong><\/a><\/p>\n\t<p><a href=\"https:\/\/www.hydroassoc.org\/traveling-with-hydrocephalus\/\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Traveling with Hydrocephalus <strong>\u2192<\/strong><\/a><\/p>\n<p><a href=\"https:\/\/www.hydroassoc.org\/staying-active\/#:~:text=Consensus-,Statement,-on%20Physical%20Activities%20for%20Children\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Consensus Statements on Physical Activities <strong>\u2192<\/strong><\/a><\/p>\n<p><a href=\"https:\/\/www.hydrocephalusconference.org\" target=\"_blank\" rel=\"noopener\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">National Conference: HA CONNECT <strong>\u2192<\/strong><\/a><\/p>\n<h2>\n\t\t\tHydrocephalus Stories\t<\/h2>\n<h3>\n\t\t\tfrom Parents in Our Community\t<\/h3>\n\t<p>Our community is brave, resilient, and inspiring. Read stories from parents with a child with hydrocephalus and share them with your friends and family.<\/p>\n\t\t\t<a href=\"https:\/\/www.hydroassoc.org\/people\/i-am-a-parent\/\" title=\"Click Here\" target=\"_self\"   role=\"button\" aria-label=\"Read Additional Stories\">\n\t\t\t\t\t\t\tRead Additional Stories\n\t\t<\/a>\n\n\r\n            <div id=\"daexthefup-container\"\r\n                 class=\"daexthefup-container daexthefup-layout-stacked daexthefup-alignment-center\"\r\n                 data-post-id=\"34976\">\r\n\r\n                <div class=\"daexthefup-feedback\">\r\n                    <div class=\"daexthefup-text\">\r\n                        <h3 class=\"daexthefup-title\">Was this resource helpful?<\/h3>\r\n                    <\/div>\r\n                    <div class=\"daexthefup-buttons-container\">\r\n                        <div class=\"daexthefup-buttons\">\r\n\t\t\t\t\t\t\t\r\n            <div class=\"daexthefup-yes daexthefup-button daexthefup-button-type-text\" data-value=\"1\">\r\n                <div class=\"daexthefup-button-text\">Yes<\/div>\r\n            <\/div>\r\n\r\n\t\t\t\t\t\t\t\t\t\t\r\n            <div class=\"daexthefup-no daexthefup-button daexthefup-button-type-text\" data-value=\"0\">\r\n                <div class=\"daexthefup-button-text\">No<\/div>\r\n            <\/div>\r\n\r\n\t\t\t                        <\/div>\r\n                    <\/div>\r\n                <\/div>\r\n\r\n                <div class=\"daexthefup-comment\">\r\n                    <div class=\"daexthefup-comment-top-container\">\r\n                        <label id=\"daexthefup-comment-label\" class=\"daexthefup-comment-label\"><\/label>\r\n\t\t\t\t\t\t                            <div class=\"daexthefup-comment-character-counter-container\">\r\n                                <div id=\"daexthefup-comment-character-counter-number\"\r\n                                     class=\"daexthefup-comment-character-counter-number\"><\/div>\r\n                                <div class=\"daexthefup-comment-character-counter-text\"><\/div>\r\n                            <\/div>\r\n\t\t\t\t\t\t                    <\/div>\r\n                    <textarea id=\"daexthefup-comment-textarea\" class=\"daexthefup-comment-textarea\"\r\n                              placeholder=\"Type your message\"\r\n                              maxlength=\"400\"><\/textarea>\r\n                    <div class=\"daexthefup-comment-buttons-container\">\r\n                        <button class=\"daexthefup-comment-submit daexthefup-button\">Submit<\/button>\r\n                        <button class=\"daexthefup-comment-cancel daexthefup-button\">Cancel<\/button>\r\n                    <\/div>\r\n                <\/div>\r\n\r\n                <div class=\"daexthefup-successful-submission-text\">Thanks for your feedback!<\/div>\r\n\r\n            <\/div>\r\n\r\n\t\t\t","protected":false},"excerpt":{"rendered":"<p>Resources For Parents Caring for a Child with Hydrocephalus Know You&#8217;re Not Alone We&#8217;re here&hellip;<\/p>\n","protected":false},"author":14,"featured_media":36612,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_helpful_pro_status":1,"_searchwp_excluded":"","inline_featured_image":false,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[1207],"tags":[],"folder":[14],"class_list":["post-34976","page","type-page","status-publish","has-post-thumbnail","hentry","category-resources"],"acf":[],"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/pages\/34976","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/comments?post=34976"}],"version-history":[{"count":0,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/pages\/34976\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/media\/36612"}],"wp:attachment":[{"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/media?parent=34976"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/categories?post=34976"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/tags?post=34976"},{"taxonomy":"folder","embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/folder?post=34976"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}