{"id":34977,"date":"2024-10-01T13:50:43","date_gmt":"2024-10-01T17:50:43","guid":{"rendered":"https:\/\/www.hydroassoc.org\/?page_id=34977"},"modified":"2025-11-19T10:19:27","modified_gmt":"2025-11-19T15:19:27","slug":"adult-hydrocephalus-resources","status":"publish","type":"page","link":"https:\/\/www.hydroassoc.org\/adult-hydrocephalus-resources\/","title":{"rendered":"Resources for Adults with Hydrocephalus"},"content":{"rendered":"\n<h3>\n\t\t\tResources\t<\/h3>\n<h1>\n\t\t\tFor Adults Living<br \/> with Hydrocephalus\t<\/h1>\n<h2>\n\t\t\tKnow You&#8217;re Not Alone\t<\/h2>\n<h3>\n\t\t\tWe are here to help you live your best life.\t<\/h3>\n<h3>\n\t\t\tFind essential tools and resources to help you advocate for yourself, make informed decisions, and manage your daily needs.\t<\/h3>\n\t<p>Hydrocephalus can impact your life in various ways, but the extent of that impact can differ. While it may present medical, financial, and social challenges, understanding how to manage the condition can help you maintain independence and control. By staying informed about ongoing care, you&#8217;ll feel empowered to make confident decisions about your health and lifestyle, opening up possibilities for a fulfilling life.<\/p>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/www.hydroassoc.org\/wp-content\/uploads\/2024\/09\/New-website-layout-600x399px-1.png\" alt=\"conference\" itemprop=\"image\" height=\"399\" width=\"600\" title=\"New website layout - 600x399px (1)\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/>\n<h3>\n\t\t\tManaging Day-to-Day Challenges\t<\/h3>\n\t<p>Living with a chronic neurological condition like hydrocephalus can bring daily challenges that may feel overwhelming. The invisibility of its symptoms can contribute to feelings of isolation. But there&#8217;s hope! We&#8217;re here to support, guide, and provide trusted resources, helping you live your best life.<\/p>\n\t\t\t<a href=\"https:\/\/www.hydroassoc.org\/managing-day-to-day-challenges\/\" title=\"Click Here\" target=\"_self\"   role=\"button\" aria-label=\"View Guide &amp; Resources\">\n\t\t\t\t\t\t\tView Guide &amp; Resources\n\t\t<\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/www.hydroassoc.org\/wp-content\/uploads\/2024\/09\/24.png\" alt=\"24\" itemprop=\"image\" height=\"399\" width=\"600\" title=\"24\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/>\n<h3>\n\t\t\tNavigating Your Care\t<\/h3>\n\t<p>Once you receive a hydrocephalus diagnosis, choosing your doctor is one of the most important decisions you will make. We have developed resources to help you explore the diverse range of specialists who cater to individuals with hydrocephalus, along with tips to aid in finding the best fit for your needs.<\/p>\n\t\t\t<a href=\"\/navigating-the-system\/\" title=\"Click Here\" target=\"_self\"   role=\"button\" aria-label=\"View Guide &amp; Resources\">\n\t\t\t\t\t\t\tView Guide &amp; Resources\n\t\t<\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/www.hydroassoc.org\/wp-content\/uploads\/2024\/09\/23.png\" alt=\"23\" itemprop=\"image\" height=\"399\" width=\"600\" title=\"23\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/>\n<h3>\n\t\t\tRelated Health Conditions\t<\/h3>\n\t<p>It&#8217;s not uncommon for individuals with hydrocephalus to experience additional symptoms or comorbidities, whether predating the diagnosis or emerging later on. Many people have to manage additional health issues such as headaches, chronic pain, and epilepsy, among others.<\/p>\n\t\t\t<a href=\"\/related-health-conditions\/\" title=\"Click Here\" target=\"_self\"   role=\"button\" aria-label=\"View Guide &amp; Resources\">\n\t\t\t\t\t\t\tView Guide &amp; Resources\n\t\t<\/a>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/www.hydroassoc.org\/wp-content\/uploads\/2024\/04\/Healthy-Living.png\" alt=\"healthy living\" itemprop=\"image\" height=\"399\" width=\"600\" title=\"Healthy Living\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/>\n<h3>\n\t\t\tHealthy Living\t<\/h3>\n\t<p>Staying healthy, from the inside out, is key to maintaining a good quality of life when living with hydrocephalus. Discover insights and strategies to optimize both your physical and mental well-being, empowering you to lead your best life possible.<\/p>\n\t\t\t<a href=\"\/healthy-living\/\" title=\"Click Here\" target=\"_self\"   role=\"button\" aria-label=\"View Guide &amp; Resources\">\n\t\t\t\t\t\t\tView Guide &amp; Resources\n\t\t<\/a>\n\t<h2><strong>A Tool for Education and Conversation<\/strong><\/h2>\n<p>Whether you were treated in childhood or diagnosed as an adult, hydrocephalus can be challenging to explain. My Hydro Bear offers a simple, approachable way to talk about your experience, whether you are sharing it with children, family, friends, or others in your community. It can also serve as a meaningful symbol of your journey.<\/p>\n<p><a href=\"https:\/\/secure2.convio.net\/hydro\/site\/Ecommerce\/898731866?store_id=1221&amp;product_id=1601&amp;VIEW_PRODUCT=true&amp;_gl=1*czv6wm*_gcl_au*Mjk2NzI2MTA2LjE3NTc0NDQxNDM.*_ga*MjAyNzI5MTU1NS4xNzM5MjI1NzA4*_ga_5RG9SRGZ6V*czE3NjM1NjM5NDkkbzE2MyRnMSR0MTc2MzU2NTUyMCRqNTckbDAkaDA.\" target=\"_blank\" rel=\"noopener\">Order My Hydro Bear for yourself or as a thoughtful gift for someone in your life. \u2192<\/a><\/p>\n\t\t\t\t<img decoding=\"async\" src=\"https:\/\/www.hydroassoc.org\/wp-content\/uploads\/2024\/08\/MyHydroBearOrangeVF.png\" alt=\"MyHydroBearOrangeVF\" itemprop=\"image\" height=\"1836\" width=\"2048\" title=\"MyHydroBearOrangeVF\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/>\n<h2>\n\t\t\tTop Resources\t<\/h2>\n<h3>\n\t\t\tOur association offers trusted, high-quality resources to empower you.\t<\/h3>\n\t<p><a href=\"https:\/\/www.hydroassoc.org\/hydroassist\/\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Mobile App: HydroAssist<sup>\u00ae<\/sup> <strong>\u2192<\/strong><\/a><\/p>\n<p><a href=\"https:\/\/www.hydroassoc.org\/find-a-community-network\/\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Online Support Groups <strong>\u2192<\/strong><\/a><\/p>\n<p><a href=\"https:\/\/www.hydroassoc.org\/hydrocephalusconnect-peer-support\/\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Peer Support: HydrocephalusCONNECT <strong>\u2192<\/strong><\/a><\/p>\n\t<p><a href=\"https:\/\/www.hydroassoc.org\/physicians-directory\/\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Find a Doctor <strong>\u2192<\/strong><\/a><\/p>\n<p><a href=\"https:\/\/www.hydroassoc.org\/ask-the-expert-video-series\/\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Video Series: Ask the Expert <strong>\u2192<\/strong><\/a><\/p>\n<p><a href=\"https:\/\/www.hydrocephalusconference.org\" target=\"_blank\" rel=\"noopener\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">National Conference: HA CONNECT <strong>\u2192<\/strong><\/a><\/p>\n\t<p><a href=\"https:\/\/www.hydroassoc.org\/webinars\/\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Webinars <strong>\u2192<\/strong><\/a><\/p>\n<p><a href=\"https:\/\/www.hydroassoc.org\/hydrocephalus-in-adults\/\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Hydrocephalus in Adults <strong>\u2192<\/strong><\/a><\/p>\n<p><a href=\"https:\/\/www.hydroassoc.org\/traveling-with-hydrocephalus\/\" data-feathr-click-track=\"true\" data-feathr-link-aids=\"5e8f8cf0d4f6e391de55d8ee\">Traveling with Hydrocephalus <strong>\u2192<\/strong><\/a><\/p>\n\t\t\t<a href=\"https:\/\/www.hydroassoc.org\/hydrocephalus-library\/\" title=\"Click Here\" target=\"_self\"   role=\"button\" aria-label=\"Hydrocephalus Resource Library\">\n\t\t\t\t\t\t\tHydrocephalus Resource Library\n\t\t<\/a>\n<h2>\n\t\t\tHydrocephalus Stories\t<\/h2>\n<h3>\n\t\t\tfrom Individuals in Our Community\t<\/h3>\n\t<p>Our community is brave, resilient, and inspiring. Read stories from individuals with hydrocephalus.<\/p>\n\t\t\t<a href=\"https:\/\/www.hydroassoc.org\/people\/i-have-hydrocephalus\/\" title=\"Click Here\" target=\"_self\"   role=\"button\" aria-label=\"Read Additional Stories\">\n\t\t\t\t\t\t\tRead Additional Stories\n\t\t<\/a>\n\n\r\n            <div id=\"daexthefup-container\"\r\n                 class=\"daexthefup-container daexthefup-layout-stacked daexthefup-alignment-center\"\r\n                 data-post-id=\"34977\">\r\n\r\n                <div class=\"daexthefup-feedback\">\r\n                    <div class=\"daexthefup-text\">\r\n                        <h3 class=\"daexthefup-title\">Was this resource helpful?<\/h3>\r\n                    <\/div>\r\n                    <div class=\"daexthefup-buttons-container\">\r\n                        <div class=\"daexthefup-buttons\">\r\n\t\t\t\t\t\t\t\r\n            <div class=\"daexthefup-yes daexthefup-button daexthefup-button-type-text\" data-value=\"1\">\r\n                <div class=\"daexthefup-button-text\">Yes<\/div>\r\n            <\/div>\r\n\r\n\t\t\t\t\t\t\t\t\t\t\r\n            <div class=\"daexthefup-no daexthefup-button daexthefup-button-type-text\" data-value=\"0\">\r\n                <div class=\"daexthefup-button-text\">No<\/div>\r\n            <\/div>\r\n\r\n\t\t\t                        <\/div>\r\n                    <\/div>\r\n                <\/div>\r\n\r\n                <div class=\"daexthefup-comment\">\r\n                    <div class=\"daexthefup-comment-top-container\">\r\n                        <label id=\"daexthefup-comment-label\" class=\"daexthefup-comment-label\"><\/label>\r\n\t\t\t\t\t\t                            <div class=\"daexthefup-comment-character-counter-container\">\r\n                                <div id=\"daexthefup-comment-character-counter-number\"\r\n                                     class=\"daexthefup-comment-character-counter-number\"><\/div>\r\n                                <div class=\"daexthefup-comment-character-counter-text\"><\/div>\r\n                            <\/div>\r\n\t\t\t\t\t\t                    <\/div>\r\n                    <textarea id=\"daexthefup-comment-textarea\" class=\"daexthefup-comment-textarea\"\r\n                              placeholder=\"Type your message\"\r\n                              maxlength=\"400\"><\/textarea>\r\n                    <div class=\"daexthefup-comment-buttons-container\">\r\n                        <button class=\"daexthefup-comment-submit daexthefup-button\">Submit<\/button>\r\n                        <button class=\"daexthefup-comment-cancel daexthefup-button\">Cancel<\/button>\r\n                    <\/div>\r\n                <\/div>\r\n\r\n                <div class=\"daexthefup-successful-submission-text\">Thanks for your feedback!<\/div>\r\n\r\n            <\/div>\r\n\r\n\t\t\t","protected":false},"excerpt":{"rendered":"<p>Resources For Adults Living with Hydrocephalus Know You&#8217;re Not Alone We are here to help&hellip;<\/p>\n","protected":false},"author":14,"featured_media":36611,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_helpful_pro_status":1,"_searchwp_excluded":"","inline_featured_image":false,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[1207],"tags":[153],"folder":[14],"class_list":["post-34977","page","type-page","status-publish","has-post-thumbnail","hentry","category-resources","tag-living-with-hydrocephalus"],"acf":[],"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/pages\/34977","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/comments?post=34977"}],"version-history":[{"count":0,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/pages\/34977\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/media\/36611"}],"wp:attachment":[{"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/media?parent=34977"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/categories?post=34977"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/tags?post=34977"},{"taxonomy":"folder","embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/folder?post=34977"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}