\n\t\t\tVirtual Meetups: National\t<\/h2>\n\t\t\t\t\t\tNPH<\/h5>\n\t\t\t
National NPH Meet-Up<\/strong><\/p>\n Join us for an NPH Community Network get-together! We all need to see old friends, and new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH throughout the USA!<\/p>\n When:<\/b>\u00a03rd Wednesday of the month Email: <\/strong>dallasnphcommunity@hydroassoc.org<\/a><\/p>\n Teens Hang-Out<\/strong><\/p>\n Come meet other teens with the condition! We’ll hang-out, maybe play an icebreaker game, talk, and hopefully make some new friends.\u00a0<\/p>\n When:<\/strong> 1st Sunday of the month<\/p>\n Contact: Maya<\/b>, Spencer, Bryon, & Aahna (Teens), Liz (CN Leader)<\/p>\n Email:\u00a0<\/strong>info@hydroassoc.org<\/a><\/p>\n \u00a0<\/p>\n \u00a0<\/p>\n Middle School Crew Chat<\/strong><\/p>\n Come meet other middle school tweens and teens with the condition! We’ll hang-out, maybe play an icebreaker game, talk, and hopefully make some new friends.\u00a0<\/p>\n When:<\/strong> 2nd Sunday of the month<\/p>\n Contact: <\/strong>Katelyn and Camille\u00a0(Middle Schoolers), Sierra Smith, HA Staff Co-Leaders<\/p>\n Email:\u00a0<\/strong>info@hydroassoc.org<\/a><\/p>\n Breaking Barriers Men’s Talk (Adults 19 and older)<\/strong><\/p>\n This group is a safe place where men, ages 19 and older, can share their experiences, support one another, and enjoy the company of those men that understand the journey of living with hydrocephalus.\u00a0<\/p>\n When:<\/strong> 4th Wednesday of the month<\/p>\n Contact:<\/strong> Alex and Patrick, Peer Support Volunteers and Group Co-Leads<\/p>\n Email: <\/strong>mensgroup@hydroassoc.org<\/a><\/p>\n Young Adults in their 20s Meet-Up<\/strong><\/p>\n Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!<\/p>\n When:<\/strong> 2nd and 4th Saturday<\/p>\n Contact:<\/strong> Pedro, Sarah, Stacy, and MacKenzie 20s CN Co-Leaders<\/p>\n Email: <\/strong>info@hydroassoc.org<\/a><\/p>\n \u00a0<\/p>\n \u00a0<\/p>\n 30ish-Living Life to the Fullest<\/strong>\u00a0HANG-OUT<\/strong><\/p>\n Join us for a chance to connect with others who share similar experiences. This group will be a place to learn, share, and support others ages 29-40 navigating the journey of hydrocephalus. We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.<\/p>\n When:<\/strong> Every 3 Months on the 1st Saturday Email: info@hydroassoc.org<\/a><\/p>\n Sharing the Journey Women’s Group Age 40+!<\/strong><\/p>\n Hydrocephalus is a complex and unpredictable condition that requires lifelong management. For women in particular, it can impact us emotionally, socially, physically, relationally, and professionally in combination with managing the day-to-day challenges of living with a chronic condition. Do you have questions about how hydrocephalus impacts you as you age? Join us for a chance to connect with other women who share similar experiences. This group will be a place to learn, share, and support other women, ages 40 and above, navigating the journey of hydrocephalus.<\/p>\n When:<\/strong> 3rd Saturday of the month<\/p>\n Contact: <\/strong>Patricia (Patty) and Kara, Group Co-Leaders<\/p>\n Email: <\/strong>info@hydroassoc.org<\/a><\/p>\n Our Shared Journey: Parent Support Group<\/strong><\/p>\n From birth through high school<\/strong>, every stage of raising a kid with hydrocephalus brings new challenges-and you don’t have to face them alone! Join other parents and expert guest speakers to learn strategies for managing anxiety (yours and your kid’s), stress, social skills, navigating IEPs, and much more. Walk away with practical tips, fresh ideas, and the confidence to tackle what’s next.<\/p>\n When:<\/strong> 2nd Monday, Quarterly<\/p>\n Contact: <\/strong>Susan, Sarah, & Shelby, MD, IN, & TX Community Network Leaders<\/p>\n Email: <\/strong>info@hydroassoc.org<\/a><\/p>\n \u00a0<\/p>\n \u00a0<\/p>\n Supportive Families Embracing Disability Journeys<\/strong><\/p>\nOPEN TO<\/strong> parents of young adult and adult children ages 19 and above living with hydrocephalus and any type of disability.\u00a0 Welcome to a supportive haven for parents! We embrace all parents navigating the complexities of hydrocephalus and intellectual and developmental disabilities in their adult children. Our inclusive community recognizes the diverse ways hydrocephalus affects our loved ones. If you’re supporting an adult child with intellectual disability\/learning challenges, autism, and\/or physical disability, you’re not alone. Join fellow parents on a shared journey to connect, discuss, and find solace in understanding each other’s experiences as caregivers, advocates, and individuals.\n When:<\/strong> 3rd Thursday of the month<\/p>\n Contact:<\/strong> Jackie and Susan, PA Community Network Leader<\/p>\n Email:<\/strong> easternpacommunity@hydroassoc.org<\/a><\/p>\n \u00a0<\/p>\n \u00a0<\/p>\n Building Bonds- Parents of Young Adults<\/strong><\/p>\n This parent-to-parent group is designed to provide a safe and welcoming space for parents with children ages 19- 29. We will gather together to share ideas, celebrate successes, and navigate the challenges of hydrocephalus in a supportive environment.<\/p>\n When:<\/strong> 3rd Tuesday, Quarterly<\/p>\n Contact:<\/strong> Tiffany, FL Community Network Leader<\/p>\n Email:<\/strong> southflcommunity@hydroassoc.org<\/a><\/p>\n L1CAM Family and Relatives Meet-Up<\/strong><\/p>\n Finding our way with L1CAM! This group is designed to be a source of encouragement, support, and share helpful resources. Our space to learn more about the impacts of the L1CAM syndrome on families within our community.<\/p>\n When:<\/strong> 3rd Tuesday every 3 months<\/p>\n Contact:<\/strong> Alison<\/p>\n Email:<\/strong> info@hydroassoc.org<\/a><\/p>\n La asociaci\u00f3n est\u00e1 aqu\u00ed para apoyar a todos los afectados por la hidrocefalia, incluyendo nuestra comunidad que habla espa\u00f1ol! Un\u00e1monos para construir un c\u00edrculo de apoyo para nuestras familias.\u00a0<\/p>\n When:<\/strong> 2do mi\u00e9rcoles cada 3 meses<\/p>\n Contact:<\/strong> Maleni<\/p>\n Email:<\/strong> info@hydroassoc.org<\/a><\/p>\n Hydrocephalus and Chronic Pain Meet-Up<\/strong><\/p>\n People living with hydrocephalus can experience specific types of chronic pain. This group will help you become familiar with the resources available to effectively manage your chronic pain symptoms. Join Dr. Maria Guglielmo as she facilitates engaging group discussions that will provide hope for individuals living with chronic pain.<\/p>\n When:<\/strong> 1st Saturday every 3 months<\/p>\n Contact:<\/strong> Dr. Maria Guglielmo<\/p>\n Email:<\/strong> info@hydroassoc.org<\/a><\/p>\n Yoga on the Brain<\/strong><\/p>\n This support group is meant to be a space where yoga therapy practices are offered as a tool and platform for supporting personal symptoms of Hydrocephalus and neurological conditions. While yoga therapy interventions provided by the certified yoga therapist and hydro warrior are offered via an evidence-based and trauma informed lens, please consult your doctor and remember that Yoga Therapy is not a replacement for medicine or medical treatment.<\/p>\n When:<\/strong> 4th Thursday, Quarterly<\/p>\n Contact:<\/strong> Lian<\/p>\n Email:<\/strong> info@hydroassoc.org<\/a><\/p>\n Homeschool Connections: Supporting Every Learner, Every Family<\/b><\/p>\nJoin a welcoming homeschool community where we will have the opportunity to share information while still honoring the unique needs of each child and family. Together, we’ll explore meaningful topics that impact your child’s learning and your experience as a parent-educator.\nThis group is a safe space to connect, learn, and grow-where your experiences are valued, your challenges are understood, and your homeschool journey is supported every step of the way.\n\u00a0\nWhen:<\/strong>\u00a0 3rd Thursday, Quarterly\n Contact:<\/strong> Brittany and Heather<\/p>\n Email:<\/strong> info@hydroassoc.org<\/a><\/p>\n Adults with Hydrocephalus Meet-Up (Mid-Atlantic & New England)<\/strong><\/p>\n Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do. <\/p>\n **Mid-Atlantic & New England Region States: New York, New Jersey, Pennsylvania, Delaware, Maryland, Virginia, West Virginia, Washington, D.C., Connecticut, Maine, Massachusetts, Rhode Island, New Hampshire, and Vermont<\/p>\n When:<\/strong> 2nd and 4th Saturday of the month<\/p>\n Contact:<\/strong> Sierra and Caitlin, PA, and Sara, MD Community Network Leaders<\/p>\n Email: <\/strong>easternpacommunity@hydroassoc.org<\/a><\/p>\n \u00a0<\/p>\n \u00a0<\/p>\n Adults with Hydrocephalus Meet-Up (Southern)<\/strong><\/p>\n Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do. <\/p>\n **Southern Region States: Alabama, Arkansas, Florida, Georgia, Kentucky, Louisiana, Mississippi, North Carolina, South Carolina, Tennessee, and Oklahoma<\/p>\n When:<\/strong> 4th Sunday of the month<\/p>\n Contact:<\/strong> Jessica, FL and Dylan and Lillian, GA Community Network Leaders<\/p>\n Email:<\/strong> atlantacommunity@hydroassoc.org<\/a><\/p>\n \u00a0<\/p>\n \u00a0<\/p>\n Adults with Hydrocephalus Meet-Up (Western)<\/strong><\/p>\n Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do. <\/p>\n **Western Region States: Alaska, Arizona, California, Hawaii, Idaho, Nevada, New Mexico, Oregon, Utah, Washington, and Wyoming<\/p>\n When:<\/strong> 1st Sunday of the month<\/p>\n Contact:<\/strong> Kelly, SLC-UT Community Network Leader\u00a0<\/p>\n Email: <\/strong>info@hydroassoc.org<\/a><\/p>\n \u00a0<\/p>\n \u00a0<\/p>\n Adults with Hydrocephalus Meet-Up (Rocky Mountain\/Midwest Region)<\/strong><\/p>\n Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do. <\/p>\n **Rocky Mountain & Midwest Region States: Montana, Colorado, Wyoming, North Dakota, South Dakota, Nebraska, Kansas, Minnesota, Iowa, Wisconsin, Illinois, Missouri, Indiana, Michigan, & Ohio<\/p>\n When:<\/strong> 3rd Saturday of the month<\/p>\n Contact:<\/strong> Steph, Eilish, and Toni Email: <\/strong>coloradocommunity@hydroassoc.org<\/a><\/p>\n Orange County NPH Support Group Meeting<\/strong><\/p>\n In partnership with the Hydrocephalus Association, the Orange County California virtual NPH support group is led by Dr. Jefferson Chen, Director of NeuroTrauma and Vice-Chair of UC Irvine Department of Neurological Surgery. This group has been created to share additional resources, information, and support offered to individuals and families affected by NPH.<\/p>\n When:<\/strong> 4th Monday of the month <\/p>\n Contact:<\/strong> Dr. Jefferson Chen, UCI <\/p>\n Email: <\/strong>ucineurosurgery@gmail.com<\/a><\/p>\n North Carolina Meet-Up<\/strong><\/p>\n Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.<\/p>\n When:<\/strong> 2nd Thursday of the month<\/p>\n Contact:<\/strong> Sarah, Charlotte Community Network Leader<\/p>\n Email: <\/strong>charlottecommunity@hydroassoc.org<\/a><\/p>\n Nevada Community Meet-Up, Rooted In Support<\/b><\/p>\n This is a welcoming space designed for parents and caregivers navigating the complexities of a neurological\u00a0condition. Together, we’ll explore ways to find meaningful support in a community that understands. Conversations will also focus on sharing tips, resources, and real-life experiences to help you advocate with confidence.\u00a0<\/p>\n When:<\/strong> 4th Thursday, Quarterly<\/p>\n Contact:<\/strong> Gigi and Jennifer<\/p>\n Email: <\/strong>nevadacommunity@hydroassoc.org<\/a><\/p>\n Our Community Network is vital to the continued strength of the Association.\u00a0<\/strong>Find your private online hydrocephalus community! If you are interested in starting an Online Community Network please contact info@hydroassoc.org<\/a>.<\/strong><\/p>\n\t\t\t\t\t\t Contact: <\/strong>Pedro Pantoja, Sarah Sink, Stacy Griffin & Mackenzie Holcomb<\/p>\n
Contact:<\/b>\u00a0Gary<\/p>\n![\"\"](\"https:\/\/www.hydroassoc.org\/wp-content\/uploads\/2022\/09\/join-our-group-1-300x90.png\")
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Contact:<\/strong> Sara, Janay, and Caitlin, 30s CN Co-Leaders<\/p>\n<\/a><\/p>\n<\/a><\/p>\n
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<\/a><\/p>\n\t\t\t\t\t\tMarque su calendario – Grupo de habla hispana<\/h5>\n\t\t\tGrupo de habla hispana<\/strong>\n\u00a1\u00danete a nosotros en nuestro primer encuentro de apoyo en l\u00ednea!<\/strong>\n
<\/a><\/p>\n\t\t\t\t\t\tHydrocephalus and Chronic Pain Management Group<\/h5>\n\t\t\t
<\/a><\/p>\n\t\t\t\t\t\tYoga on the Brain<\/h5>\n\t\t\t
<\/a><\/p>\n\t\t\t\t\t\tHomeschool Connections: Supporting Every Learner, Every Family<\/h5>\n\t\t\t
<\/a><\/p>\n\n\t\t\tVirtual Meetups: Regional\t<\/h2>\n\t\t\t\t\t\t
Adults<\/h5>\n\t\t\t
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Colorado, Montana, and Wisconsin Community Network Leaders<\/p>\n<\/a><\/p>\n\t\t\t\t\t\tNPH: Orange County, CA<\/h5>\n\t\t\t
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<\/a><\/p>\n\t\t\t\t\t\tNevada Community Meet-Up, Rooted In Support<\/h5>\n\t\t\t
<\/a><\/p>\n\n\t\t\tOnline Community Networks\t<\/h2>\n\t
National Young Adults (Age 20s)<\/h5>\n\t\t\t