{"id":39382,"date":"2025-08-25T15:40:03","date_gmt":"2025-08-25T19:40:03","guid":{"rendered":"https:\/\/www.hydroassoc.org\/?p=39382"},"modified":"2025-10-28T13:40:37","modified_gmt":"2025-10-28T17:40:37","slug":"podcast-miya-milas-hydrocephalus-story","status":"publish","type":"post","link":"https:\/\/www.hydroassoc.org\/podcast-miya-milas-hydrocephalus-story\/","title":{"rendered":"Podcast: We Just One-Daying It: Miya + Mila\u2019s Hydrocephalus Story"},"content":{"rendered":"<h2>Hydro Heroes Unite Podcast: Episode 1<\/h2>\n<p><script src=\"https:\/\/www.buzzsprout.com\/2521693\/episodes\/17549412-we-just-one-daying-it-miya-mila-s-hydrocephalus-story.js?container_id=buzzsprout-player-17549412&#038;player=small\" type=\"text\/javascript\" charset=\"utf-8\"><\/script><\/p>\n<p>In this first episode of\u00a0<em>Hydro Heroes Unite<\/em>, <a href=\"https:\/\/www.taishacameron.com\/\" target=\"_blank\" rel=\"noopener\">Taisha Cameron<\/a> sits down with Miya \u2014 a mother of three whose youngest daughter Mila lives with hydrocephalus and cerebral palsy. Miya opens up about navigating a four-month NICU stay with newborn twins during the pandemic, while also parenting a toddler at home.<\/p>\n<p>We explore what survival mode really looks like, what comes\u00a0<em>after<\/em>\u00a0crisis, and how Miya stays grounded in the long game of raising a child with special medical needs. This conversation is raw, real, and incredibly powerful.<\/p>\n<hr \/>\n<h3>Topics we cover include:<\/h3>\n<ul>\n<li>NICU life with preemie twins<\/li>\n<li>Balancing home and hospital during COVID<\/li>\n<li>Processing trauma after survival<\/li>\n<li>Self-care, grief, and advocacy<\/li>\n<li>The strength of doing \u201cjust one day\u201d at a time<\/li>\n<\/ul>\n<hr \/>\n<h3>Resources:<\/h3>\n<ul>\n<li><a href=\"https:\/\/bit.ly\/hydroheroform\" target=\"_blank\" rel=\"noopener\">Request a Hydro Hero shoutout on the show<\/a><\/li>\n<li><a href=\"https:\/\/www.hydroassoc.org\/shunt-systems\/\">Shunt Systems Article<\/a><\/li>\n<li><a href=\"https:\/\/www.hydroassoc.org\/shunt-malfunctions-frequently-asked-questions\/\">Shunt Malfunction FAQs Article<\/a><\/li>\n<li><a href=\"https:\/\/www.hydroassoc.org\/complications-of-shunt-systems\/\">Complications of Shunt System Article<\/a><\/li>\n<li><a href=\"https:\/\/www.hydroassoc.org\/emergency-plan-for-hydrocephalus-complications\/\">Developing an Emergency Plan for Hydrocephalus Complications Article<\/a><\/li>\n<li><a href=\"https:\/\/www.hydroassoc.org\/ask-the-expert-video-series-barometric-pressure-and-hydrocephalus\/\">Ask the Expert Video: Barometric Pressure<\/a><\/li>\n<li><a href=\"https:\/\/www.hydroassoc.org\/physicians-directory\/\">Find a Doctor &#8211; HA Physicians&#8217; Director<\/a>y<\/li>\n<li><a href=\"https:\/\/www.hydroassoc.org\/traveling-with-hydrocephalus\/\">Traveling and Hydrocephalus Article<\/a><\/li>\n<li><a href=\"https:\/\/www.hydroassoc.org\/hydroassist\/\">Download HydroAssist\u00ae Mobile Application<\/a><\/li>\n<li><a href=\"https:\/\/www.hydroassoc.org\/developmental-milestones-in-hydrocephalus\/\">Essential Guide: Developmental Milestones in Hydrocephalus Article<\/a><\/li>\n<li><a href=\"https:\/\/www.hydroassoc.org\/your-healthcare-team-2\/\">Your Healthcare Team Article<\/a><\/li>\n<li><a href=\"https:\/\/www.hydroassoc.org\/hydrocephalus-library\/\">Search HA&#8217;s Hydrocephalus Resource Library<\/a><\/li>\n<li><a href=\"https:\/\/www.hydroassoc.org\/parent-hydrocephalus-resources\/\">Parent Resources<\/a><\/li>\n<li><a href=\"https:\/\/www.hydroassoc.org\/get-support\/\">Get Support<\/a><\/li>\n<li><a href=\"https:\/\/www.hydroassoc.org\/caring-for-the-caregiver\/\">Caring for the Caregiver Article<\/a><\/li>\n<\/ul>\n<hr \/>\n<p><em>Created in partnership with actor and podcaster <a href=\"https:\/\/www.taishacameron.com\/\" target=\"_blank\" rel=\"noopener\">Taisha Cameron<\/a>.<\/em><\/p>\n<p><em>Follow on Instagram:\u00a0<a href=\"https:\/\/www.instagram.com\/taishaycameron\" target=\"_blank\" rel=\"noopener\">@taishaycameron<\/a>,\u00a0<a href=\"https:\/\/www.instagram.com\/hydroassoc\/\" target=\"_blank\" rel=\"noopener\">@hydroassoc<\/a><\/em><\/p>\n\r\n            <div id=\"daexthefup-container\"\r\n                 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beyond.<\/p>\n","protected":false},"author":16,"featured_media":39404,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_helpful_pro_status":1,"_searchwp_excluded":"","inline_featured_image":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4,1131,1182,1207],"tags":[1216,153,1212,1222,1214,1231],"post_folder":[1239],"class_list":["post-39382","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-article","category-life-with-hydro","category-rating","category-resources","tag-early-childhood-development","tag-living-with-hydrocephalus","tag-managing-your-care","tag-personal-stories","tag-related-conditions","tag-treatment-complications"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.hydroassoc.org\/wp-content\/uploads\/2025\/08\/Ft-Image-for-Blogs-and-SYS-300x240-1.jpg","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/posts\/39382","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/users\/16"}],"replies":[{"embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/comments?post=39382"}],"version-history":[{"count":0,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/posts\/39382\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/media\/39404"}],"wp:attachment":[{"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/media?parent=39382"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/categories?post=39382"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/tags?post=39382"},{"taxonomy":"post_folder","embeddable":true,"href":"https:\/\/www.hydroassoc.org\/wp-json\/wp\/v2\/post_folder?post=39382"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}