{"id":482,"date":"2020-03-03T08:59:40","date_gmt":"2020-03-03T13:59:40","guid":{"rendered":"https:\/\/www.hydroassoc.org\/?page_id=482"},"modified":"2025-11-19T10:35:23","modified_gmt":"2025-11-19T15:35:23","slug":"resources","status":"publish","type":"page","link":"https:\/\/www.hydroassoc.org\/resources\/","title":{"rendered":"Hydrocephalus Resources"},"content":{"rendered":"\n

\n\t\t\tRESOURCES\t<\/h1>\n

\n\t\t\tHA is your trusted source for information at every stage of life. We offer resources that provide life-changing support to people living with hydrocephalus and their loved ones-from educational materials to webinars, videos, our National Conference, and more.\t<\/h3>\n

\n\t\t\tFree Downloadable Resources\t<\/h2>\n\t

Medical Summary \u2192<\/strong><\/a><\/p>\n\t

Teachers’ Guides \u2192<\/a><\/strong><\/p>\n\t

Toolkit for Transitioning Medical Care \u2192<\/strong><\/a><\/p>\n\t

A Guide for Families \u2192<\/strong><\/a><\/p>\n\t

A Guide for Adults \u2192<\/strong><\/a><\/p>\n\t

Kids Coloring Book: Barney Beagle \u2192<\/strong><\/a><\/p>\n\t

To help you in the process of building your healthcare team, we have developed the Physicians’ Directory. This first-ever physician finder tool allows you to search by location, specialist, and\/or age served.<\/p>\n\t\t\t\n\t\t\t\t\t\t\tLearn More\n\t\t<\/a>\n\t

Explore our Hydrocephalus Resource Library, offering comprehensive support, expert insights, and personal stories for every stage of the hydrocephalus journey.<\/p>\n\t\t\t\n\t\t\t\t\t\t\tLearn More\n\t\t<\/a>\n\t

Stay in the know with our free, interactive webinars! These webinars are designed to educate our community on a variety of topics for all ages, latest research breakthroughs, medical information, new technology, and more.<\/p>\n\t\t\t\n\t\t\t\t\t\t\tLearn More\n\t\t<\/a>\n\t

My Hydro Bear: A Helpful Learning Companion for All Ages<\/strong><\/h2>\n

Hydrocephalus can be difficult to explain, whether you’re talking with a child, a teen, or another adult. My Hydro Bear has a shunt, offering a clear visual that helps people understand treatment, ask questions, and feel more confident discussing hydrocephalus. It’s a meaningful tool for families, individuals, and anyone looking to learn or educate others.<\/p>\n

Order My Hydro Bear for yourself or as a meaningful gift for someone navigating hydrocephalus. \u2192<\/a><\/p>\n\t\t\t\t\"MyHydroBearOrangeVF\"\n\t\t\t\t\"HydroAssist\n\t

HydroAssist\u00ae<\/strong><\/h2>\n

With help from an adult neurologist, a pediatric neurosurgeon, and a medical app developer, the Hydrocephalus Association developed the first mobile app that allows you to take your entire hydrocephalus treatment history with you on your smartphone. HydroAssist\u00ae is the first mobile app that allows you to record and store your hydrocephalus treatment history and access it when you need it from your mobile device.<\/p>\n\t\t\t\n\t\t\t\t\t\t\tLearn More\n\t\t<\/a>\n\t\t\t\t\n\t\t\t\t\"APPLE\"\n\t\t\t\t<\/a>\n\t\t\t\t\n\t\t\t\t\"Google\n\t\t\t\t<\/a>\n\t

The Hydrocephalus Association’s “Ask the Expert” video series brings individuals living with hydrocephalus and loved ones direct access to professionals who can answer commonly asked questions.<\/p>\n\t\t\t\n\t\t\t\t\t\t\tWatch Now\n\t\t<\/a>\n\tDiscover Hydro Heroes Unite, the hydrocephalus podcast bringing stories, expert insights, and support to inspire and connect our community.\n\t\t\t\n\t\t\t\t\t\t\tLearn More\n\t\t<\/a>\n\t

We offer educational videos to help you gain a better understanding of the condition and learn strategies for living well with hydrocephalus. Our videos include interviews with medical professionals and other experts and highlight stories of people living with hydrocephalus.<\/p>\n\t\t\t\n\t\t\t\t\t\t\tWatch on YouTube\n\t\t<\/a>\n\t\t\t\n\t\t\t\t\t\t\tWatch on Vimeo\n\t\t<\/a>\n\t

Visit our blog, with updates about our research and advocacy efforts, inspiring stories about people in the hydrocephalus community, and important announcements.<\/p>\n\t\t\t\n\t\t\t\t\t\t\tRead our Blog\n\t\t<\/a>\n\t

Stay informed about the latest initiatives and events taking place at the Hydrocephalus Association and learn about new hydrocephalus research, education, and support efforts. Sign up for the Hydrocephalus Association monthly electronic newsletter, Pathways!<\/p>\n\t\t\t\n\t\t\t\t\t\t\tLearn More\n\t\t<\/a>\n\t

Hydrocephalus knows no boundaries. You can be born with it, acquire it, or develop it as part of the aging process. We experience different symptoms and we encounter various challenges and obstacles throughout our lives. Everyone has a unique story to tell. Our community is brave, resilient, and inspiring. Read stories from individuals living with hydrocephalus and their loved ones and share them with your friends and family.<\/p>\n\t\t\t\n\t\t\t\t\t\t\tRead Stories of Hope\n\t\t<\/a>\n\t\t\t\n\t\t\t\t\t\t\tShare Your Story\n\t\t<\/a>\n\t

COVID-19 Guidance for People Living with Hydrocephalus<\/h2>\n

We know that the coronavirus (COVID-19) pandemic is causing concern and raising questions. To help you navigate, here you’ll find information and recommendations.<\/p>\n

Learn More ><\/a><\/p>\n\n\r\n

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