With a deep understanding of the challenges posed by hydrocephalus—both through personal experience and by supporting countless families—we are committed to guiding you to the support you need. Our compassionate staff is ready to listen and provide you with informed, up-to-date resources that will help you navigate the complexities of this condition.
It’s not uncommon to feel overwhelmed when dealing with a chronic medical condition, and we want you to know there are resources available to you. In addition to educational resources and programs, we offer a toll-free helpline to provide support when you need it most. Through the helpline, we answer your questions and refer you to helpful educational resources and support programs.
Hydrocephalus affects everyone differently, that’s why it’s important to have someone you can count on to support you in the way that you need. HydrocephalusCONNECT provides you with access to trained volunteers, via phone or email, who have been coping with the complexities of hydrocephalus.
You're not alone. We're here to support and guide you through your hydrocephalus journey!
Find a Support Group
It’s important to know that you’re not alone as you deal with hydrocephalus. Our support groups, also known as Community Networks, provide localized support, education, and empowerment through community. Our network hosts educational events, support group meetings, and other gatherings that enable individuals and families to connect.
Pen Pal Program: Ages 7-12
Our Pen pal program is designed to support kids ages 7-12 in finding real and lasting friendships with others that understand the journey with hydrocephalus. Being and having a Pen pal can help your child develop a sense of connection and genuine friendship.