We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology, and more.
Our webinar series features presentations from medical professionals, researchers, and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event.
Next Webinar
Wednesday, September 23, 2026 | 7:00 pm ET
Understanding Neuropsychological Testing in Hydrocephalus: Developing a Web-Based Assessment
Neuropsychological testing can provide valuable insights into how hydrocephalus affects memory, attention, thinking, and daily functioning. In this webinar, Dr. Catherine Stephan will give an overview of what neuropsychological testing is, why it is used, and how it helps clinicians understand changes in brain function for people living with hydrocephalus. She will also introduce her research exploring a new telemedicine-based assessment approach designed to monitor cognitive changes that may signal shunt malfunction. By combining traditional neuropsychological tests with simple tasks and online tools, this project aims to develop a convenient, repeatable way to track cognitive health remotely. Join us to learn how this work could help create more accessible tools for monitoring brain function and improving care for individuals with hydrocephalus.
Presenter:
Catherine Stephan, PhD
Clinical Neuropsychologist, Kennedy Krieger
Assistant Professor, Psychiatry and Behavioral Sciences, Johns Hopkins University
Future Webinars
Tuesday, October 6, 2026 | 7:00 pm ET
The Role of Genetic Counseling in Hydrocephalus Care
Genetic counseling can be an important part of care for some individuals and families affected by hydrocephalus, yet many are unsure what it involves or whether it is right for them. This educational webinar will provide an overview of genetic counseling in the context of hydrocephalus, beginning with basic genetics concepts, reviewing what is currently understood about the genetics of hydrocephalus, and explaining what patients and caregivers can expect from a genetics evaluation and genetic testing process. The session will be presented by Allison Goodwin, MS, CGC, Genetic Counselor at VCU Medical Center in Clinical Genetics Services, and is designed to help families better understand the purpose, potential benefits, and limitations of genetic counseling as part of hydrocephalus care.
Presenter:
Allison Goodwin, MS, CGC
Licensed and Certified Genetic Counselor
VCU Health – Richmond, Virginia
Webinar Recordings
To view our webinar recordings, click on the drop downs listed below.