I am a parent
Diagnosed At 4 months
Camden
Story Written by Grandmother
Camden was diagnosed with hydrocephalus in infancy and had multiple brain surgeries before age two, yet his joy, strength, and love shine bright.
Diagnosed In-utero
Ethan
Story Written by Father
Ethan was diagnosed with hydrocephalus before birth and grew at his own pace—meeting every milestone with joy, determination, and a smile.
Diagnosed at 11 Months
Allison
Story Written by Mother
Allison was diagnosed with hydrocephalus at 11 months. After multiple surgeries and therapy, she’s now 6, thriving, strong, and full of courage.
Diagnosed at 3 Months
Colton
Story Written by Mother
Colton was a preemie diagnosed with hydrocephalus and a tough start. At 4, he’s thriving, playing, and full of joy.
Diagnosed at 2
Hunter
Story Written by Mother
Hunter was 2 when his parents’ persistence led to his hydrocephalus diagnosis—after months of being told nothing was wrong.
Diagnosed In-utero
In Memory of Maryam
Story Written by Mother
In memory of Maryam, diagnosed with hydrocephalus before birth, Maryam’s journey highlights the critical care gaps faced by families across Africa.
Diagnosed In-utero
Hannah
Story Written by Mother
Hannah, a twin diagnosed with hydrocephalus before birth, is defying the odds. After surgeries and setbacks, she’s now thriving in everyday life.
Diagnosed at 16 days
Colton
Story Written by Mother
Born premature, Colton faced hydrocephalus and multiple shunt surgeries. Now, at almost three, he’s thriving and two years shunt failure-free!
Diagnosed at 1 month
Savannah
Story Written by Mother
Savannah introduced her mother to hydrocephalus 13 years ago and has since been her greatest teacher. Her resilience and determination inspired her mother to become a Teacher of Students with Visual Impairments, turning challenges into purpose.
Diagnosed In-utero
Ryder
Story Written by Mother
Ryder, an 11-year-old living with spina bifida and hydrocephalus, has faced countless challenges, yet his resilience inspires his family every day.
Cavan, Breccan, and Teagan
Story Written by Mother
Caitlin shares her family’s unique journey of having three children diagnosed with hydrocephalus, beginning with her oldest son, Cavan. Despite being told the condition wasn’t genetic, both of her younger children, Breccan and Teagan, were also diagnosed with hydrocephalus.
Diagnosed at 8 Months
Oliver
Story Written by Father
It has now been almost 4 months since Oliver had his shunt placed, and he is living life to the fullest!
Diagnosed at 5 Months
Cadogan
Story Written by Father
Cadogan, born with hydrocephalus, has faced multiple surgeries and challenges, but continues to show resilience and progress with the strong support of his family.
Diagnosed at 1 Month
Benaiah
Story Written by Mother
Nineteen. That’s how many days Benaiah’s family had with him before realizing how much he was up against. Benaiah’s story is hard, but it’s a good one, filled with hope and strength.
Diagnosed In-utero
In Memory of Our Miracle Carla
Story Written by Parent and Sister
Carla’s journey began with a revelation that resonated with uncertainty. Carla was diagnosed with congenital…
Diagnosed at Birth
Tyerria
Story Written by Mother
“Our miracle baby is now a young woman who has been truly blessed and remains steadfast.” Read Tyerria’s story, told by her mom, Terra.
Diagnosed at Birth
Cecilia
Story Written by Mother
Kristen shares Cecilia’s inspiring journey, born at 29 weeks, a testament to resilience and the human spirit’s triumph.
Diagnosed at Birth
Zoe
Story Written by Father
Zoe is not even a year old but has already endured 13 surgeries due to hydrocephalus. Despite her challenges, she continues to amaze everyone with her smiles and joy.
Diagnosed at 1 Month
Jack
Story Written by Mother
At almost 2 years old, Jack has already endured nine brain surgeries to treat his hydrocephalus. But his parents have no doubt that their little “fighter” will continue to amaze them and make them stronger in the process.
Diagnosed In-utero
Isaac
Story Written by Mother
When Isaac developed hydrocephalus, his parents were told that he would have severe disabilities his entire life. Now, the spunky 3-year-old is defying the odds – running, laughing, dancing, speaking two languages and more!