Know You're Not Alone
We are here to help you live your best life.
Find essential tools and resources to help you advocate for yourself, make informed decisions, and manage your daily needs.
NPH and Rehabilitation Services
Undergoing surgery is a critical first step to regaining functionality lost to normal pressure hydrocephalus (NPH), but it may not be the whole solution. After surgery, physical therapy, occupational therapy, and other rehabilitation strategies may be advised to help you or your loved one attain as much resolution of symptoms as possible.
Navigating Your Care
Once you receive a hydrocephalus diagnosis, choosing your doctor is one of the most important decisions you will make. We have developed resources to help you explore the diverse range of specialists who cater to individuals with hydrocephalus, along with tips to aid in finding the best fit for your needs.
Related Health Conditions
It's not uncommon for individuals with hydrocephalus to experience additional symptoms or comorbidities, whether predating the diagnosis or emerging later on. Many people have to manage additional health issues such as headaches, chronic pain, and epilepsy, among others.
Healthy Living
Staying healthy, from the inside out, is key to maintaining a good quality of life when living with normal pressure hydrocephalus (NPH). Gain tips and tools to optimize your body and mind so you can live your best life!
A Tool for Education and Conversation
For adults living with normal pressure hydrocephalus (NPH), explaining the condition to family, friends, and caregivers can be challenging. My Hydro Bear has a shunt, offering an easy and approachable way to talk about NPH and treatment. It can be especially helpful when explaining things to grandchildren or younger family members who want to understand. It can also serve as a meaningful symbol of your journey.
Order My Hydro Bear for yourself or as a thoughtful gift for someone in your life. →
Top Resources
Our association offers trusted, high-quality resources to empower you.
Hydrocephalus Stories
from Individuals in Our Community
Our community is brave, resilient, and inspiring. Read stories from individuals with hydrocephalus.
Diagnosed at 63
Tina
Story Written by Husband
Tina was diagnosed with NPH after months of unexplained changes and declining mobility. Now, her husband shares their ongoing journey of care and hope.
Diagnosed at 75
John
Story Written by Wife
John was diagnosed with normal pressure hydrocephalus (NPH) at the age of 75. Sukey, John’s wife, shares his journey.
Diagnosed at 64
Barkley
Story Written by Self
Barkley’s story reflects perseverance, navigating life with normal pressure hydrocephalus, shunt surgeries, and setbacks with courage and hope.
Diagnosed at 73
Carol
Story Written by Self
Carol shares her journey with normal pressure hydrocephalus, from sudden memory loss to regaining independence after life-changing shunt surgery.
Diagnosed at 75
Karen
Story Written by Self
Karen went from struggling to walk to living well with NPH after shunt surgery—and now she’s advocating to raise awareness of hydrocephalus.
Diagnosed at 70
Harry
Story Written by Self
Misdiagnosed with Parkinson’s, Harry fought for the right diagnosis—NPH. Now, he’s rebuilding his life with therapy, community, and renewed independence.