It’s not uncommon to feel overwhelmed when dealing with a chronic medical condition, and we want you to know there are resources available to you. In addition to educational resources and programs, the Hydrocephalus Association offers a toll-free helpline to provide support when you need it most. Through the helpline, we answer your questions and refer you to helpful educational resources and support programs.
Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.
Hours of Operation
Monday through Friday from 9:00 AM to 5:00 PM Eastern.
It’s important to know that you’re not alone as you deal with hydrocephalus. Our support groups, also known as Community Networks, provide localized support, education, and empowerment through community. Our network hosts educational events, support group meetings, and other gatherings that enable individuals and families to connect.
Hydrocephalus affects everyone differently, that’s why it’s important to have someone you can count on to support you in the way that you need. HydrocephalusCONNECT provides you with access to trained volunteers, via phone or email, who have been coping with the complexities of hydrocephalus.
Frequently Asked Questions
You may be able to find the answer to your question by visiting our Resources.