2026 Goal $1,900,000
Help us find a cure for hydrocephalus by participating in a WALK to End Hydrocephalus near you.
Every year, over 8,500 people participate in a WALK to End Hydrocephalus in over 40 locations throughout the country.
The Hydrocephalus Association WALKs provide an opportunity for individuals and families to connect with others impacted by hydrocephalus and raise critical funds for:
- the Hydrocephalus Association's research
- support and educational resources
- advocacy efforts in Congress
By joining a WALK near you, you’re helping support the more than 1 million Americans living with hydrocephalus — and taking an important step toward a future without it.
Find a WALK Near You!
No WALK near you? Join our Anywhere Virtual WALK Event and/or consider starting an HA WALK in your community. Please contact the our national office (888) 598-3789 or email walk@hydroassoc.org to speak with someone about new WALK opportunities.
| Alabama | Alabama | Website |
| Arkansas | Northwest Arkansas | Website |
| Arkansas | Texarkana | Website |
| Arizona | Phoenix | Website |
| California | Central Valley (Lathrop) | Website |
| California | Los Angeles | Website |
| California | Orange County | Website |
| California | Sacramento | Website |
| Colorado | Denver | Website |
| Florida | South Florida | Website |
| Florida | St. Petersburg/Tampa Bay | Website |
| Georgia | Atlanta | Website |
| Iowa | Iowa | Website |
| Illinois | Chicago | Website |
| Indiana | Indianapolis | Website |
| Kansas | Wichita | Website |
| Kentucky | Central | Website |
| Louisiana | New Orleans | Website |
| Maine | Portland | Website |
| Maryland | Baltimore | Website |
| Massachusetts | Boston | Website |
| Michigan | Detroit | Website |
| Minnesota | Twin Cities - Minneapolis/St. Paul | Website |
| Missouri | St. Louis | Website |
| Montana | Bozeman | Website |
| Nebraska | Omaha | Website |
| New York | Long Island | Website |
| New York | Western NY | Website |
| New Jersey | Jersey Shore | Website |
| North Carolina | Charlotte | Website |
| North Carolina | Raleigh/Durham | Website |
| Ohio | Cincinnati | Website |
| Ohio | Cleveland | Website |
| Ohio | Columbus | Website |
| Oklahoma | Oklahoma City | Website |
| Oregon | Oregon | Website |
| Pennsylvania | Philadelphia | Website |
| Pennsylvania | Central PA | Website |
| Pennsylvania | Pittsburgh | Website |
| South Carolina | Columbia | Website |
| Tennessee | Eastern Tennessee | Website |
| Texas | Dallas/Fort Worth | Website |
| Texas | Houston | Website |
| Utah | Salt Lake City | Website |
| Virginia | Virginia Beach | Website |
| Washington | Seattle | Website |
| Washington DC | National Capital | Website |
| Virtual | Anywhere VIRTUAL WALK to End Hydrocephalus | Website |
Fundraising Tools
Why We WALK
The WALK to End Hydrocephalus brings the local hydrocephalus community together to build meaningful connections and raise awareness for this life-altering and potentially life-threatening condition.
While the WALK is an inspiring and uplifting day, its purpose is deeply important: to fund critically needed hydrocephalus research and provide essential support and education for individuals and families living with the challenges of hydrocephalus.
Every step taken and every dollar raised moves us closer to better treatments — and ultimately, a cure. Join us at the WALK to End Hydrocephalus and take advantage of our fundraising tools and resources to help you reach and exceed your goal.
Getting Started
The first step in participating in the WALK to End Hydrocephalus is registering for your local WALK event! Don’t see one near you? You can register for our virtual event and WALK from anywhere in the country. Once you have registered, you can access your Fundraising Page and start your fundraising! Follow these steps to get started:
- Personalize your fundraising page with your personal story and photo. Adding personal touches lets your friends and family know who you are fighting for and will motivate them to support you. Learn more about managing your fundraising page here
- Create a Facebook Fundraiser. Creating a Facebook Fundraiser through your Participant Center will allow your Facebook friends to directly donate to your personal page in a quick and easy way. Facebook Fundraisers can be easily shared by your friends to reach even more people! Follow these steps to link your fundraiser
- Make a self-donation. Be the first to donate to your own fundraiser! Friends and family will be encouraged to donate to your personal page if they see you started the fundraising efforts!
- Bump up your fundraising goal. You can easily change your fundraising goal by visiting your Fundraising Page. If you have reached your fundraising goal, bump it up and tell your friends and family that your fundraising efforts are not over!
Log in to your account and utilize the pre-written messages to boost your fundraising efforts and thank those who have donated to you. Share your fundraising page to ask friends and family to join you or make a donation. Find out more here.
We accept donations in all shapes and forms: credit cards, Google Pay, Apple Pay, Venmo, PayPal, Crypto! Please send physical checks to the following address in a secure envelope: Hydrocephalus Association, 6903 Rockledge Dr, Suite 740, North Bethesda, MD 20817 with a note identifying which WALK and which participant to credit.
Teams
Create a team of any size and invite your friends and family to join you on WALK day. It’s a powerful way to come together in support of a hydro warrior and show that no one faces hydrocephalus alone.
Manage Your Team
As a Team Captain, you want to encourage people to join your team and keep them energized to reach their goals! Send messages directly to your team members and keep them updated on all Event Day details.
Team Captains should encourage their team members to:
- Set a goal
- Update their personal Fundraising Page with a photo and story
- Connect a Facebook Fundraiser Follow these steps to link your fundraiser!
- Share social media graphics from our toolkit
- Reach out to local companies interested in sponsorship opportunities.
- Thank donors through the Fundraising Page emails
- Stay up to date on Event Day details
- Reach their fundraising goals by WALK Day to qualify for a WALK t-shirt and additional recognition gifts [link to recognition gifts coming soon]
Fundraising Resources
Fundraising with Facebook update!
Facebook has become a powerful tool not only for connecting with friends and loved ones, but especially for fundraising. That’s why we encourage you to raise money for your WALK to End Hydrocephalus team by setting up a Facebook Fundraiser.
To ensure that the money you raise through your Facebook Fundraiser gets credited to your WALK to End Hydrocephalus efforts, you must set it up through GoFundMe Pro. The process is fast and easy! Follow these steps to link your fundraiser!
- Access your GoFundMe Pro fundraising page.
- Log in at the top of the page if you haven’t already.
- In the header, select Manage.
- Select the Facebook tab.
- Select Create.
- When the Facebook login prompt appears, log in if you haven't already.
- Make sure you allow Manage your Fundraisers (slide the toggle on).
Tips to Make Your Facebook Fundraiser Successful:
- Reshare your Facebook Fundraiser on Facebook at least once every two weeks. Update your photo or video—perhaps by sharing a video explaining why this cause is important.
- Your page will be more noticeable if friends see a picture of you or a loved one instead of a generic photo.
- Tell your Facebook followers that donations help fund HA research as well as programs that provide support, education, advocacy, and awareness.
- Keep everyone up to date on how much is still needed to reach your fundraising goal. Make sure to continue to publicly thank people when they contribute!
Sample Facebook Post:
Hi friends! I’m raising money for the Hydrocephalus Association (HA) because my daughter/son was born with hydrocephalus, which has no cure and can only be treated through brain surgery. My child has endured 10 brain surgeries! HA is the nation’s leading nonprofit funder of hydrocephalus research and they provide free support and education to families like mine. Help me find a cure for this condition by donating to my fundraiser! Thank you! [INCLUDE LINK TO YOUR FACEBOOK FUNDRAISER]
Fundraising Ideas
Facts About Hydrocephalus
Hydrocephalus
Hydrocephalus is a chronic condition caused by an abnormal accumulation of cerebrospinal fluid, resulting in pressure on the brain
Hydrocephalus Is Common
Over one million Americans have hydrocephalus, in every stage of life, from infants to the elderly. Many US military personnel who suffered traumatic brain injury during service in Iraq and Afghanistan are developing hydrocephalus as a result.
- Anyone, at any age, may be diagnosed with hydrocephalus.
- Over 5,000 babies are born with hydrocephalus every year in the US alone.
- Hydrocephalus is the most common reason for brain surgery in children.
There Is No Cure
Currently there is no prevention for hydrocephalus and there is no cure. The most common treatment is brain surgery to implant a shunt but a shunt is not a cure! A shunt is only a control and in children has a 50% failure rate in the first two years, requiring additional surgeries. While many people are helped by surgery, many more need further operations to stay well. Over 36,000 hydrocephalus operations are performed annually in the U.S. (one every 15 minutes.). Having a shunt may result in a single patient enduring dozens of brain surgeries just to survive; a single patient undergoing 100+ is not rare. The hospital charges for hydrocephalus are over $2 billion per year, yet the National Institutes of Health (NIH) invests less than $11 million per year in hydrocephalus treatment.
There Is a Crisis in Diagnosis
An estimated 800,000 older Americans have normal pressure hydrocephalus (NPH) as many as 640,000 of them are undiagnosed or may be misdiagnosed with Alzheimer’s, Parkinson’s disease, or dementia. Sadly, many are living in nursing homes unnecessarily -- when properly diagnosed and treated the patient often returns to normal functioning.
Hydrocephalus often is undiagnosed and untreated in younger adults, leading to substantial loss of productivity and increased healthcare costs.
More Effective Treatment Is Needed Now
Over the last 65 years, although technology has improved, there has been no significant change in hydrocephalus treatment. Research is essential. Since 2009 when the Hydrocephalus Association added “funding research” to its portfolio it has committed more than $13.8 million to research making it the largest non-profit, non-governmental funder of hydrocephalus research in the U.S.! But new revenue resources must be found to continue HA’s aggressive research program.
The Hydrocephalus Association (HA)
The Hydrocephalus Association was founded in 1983. It is the largest non-profit organization dedicated solely to hydrocephalus in the world. Its mission: to promote a cure for hydrocephalus and improve the lives of those impacted by the condition. You can help. Join the Hydrocephalus Association now in their fight against hydrocephalus!
Letter Writing Campaign
- Write Your Letter: Your own letter comes from your heart. As one parent writes, “Someone’s going to ask you to donate to something. It might as well be me. I can think of NO BETTER CAUSE! Please, make the Hydrocephalus Association your cause to support.” Tell your family’s story about how hydrocephalus has impacted not only the patient, but every member of the family. (Sample letters are below.)
- Make Copies of Your Letter (If using Postal Service for delivery):
- Sign each letter individually; perhaps with a personal closing
- Make sure to leave the signature block blank so you can personally sign each letter
- Enclose a copy of the Facts about Hydrocephalus document.
- Enclose a self-addressed envelope for their reply (stamped, if possible)
- Mail and/or e-mail the letter to:
- Family and extended family
- Friends and neighbors
- Co-workers and acquaintances
- Business associates and vendors
- Clubs, organizations, teams, and classes to which you or your family members belong.
- If you need help preparing your mailing, organize a letter-addressing party. Pull the entire family together to sign, stuff, stamp and address your envelopes—even the kids can help! You’ll be surprised what people will do for free food.
Mail or email your letters, ideally eight weeks before the WALK to End Hydrocephalus. But if you’re running late, don’t despair, there’s still time—you have four weeks after the WALK to finish collecting money toward a recognition gift. - Collect Your Donations: Nothing is quite as exciting as receiving your mail or checking your WALK webpage and seeing donations begin to arrive! You can expect to raise approximately $600–$800 with a letter-writing campaign. Some families have raised $20,000 or more!
- Attend the WALK to End Hydrocephalus: Have fun! Join your teammates and others who are walking to make a difference! Take a great thank-you photo!
- Thank You Notes: Let each one of your donors know how much you appreciate their support. Use this occasion to announce how much your team raised. Consider printing your best team photo to say thank you and share the day with your donors.
Frequently Asked Questions
Why I WALK
"I participate in the Houston WALK to End Hydrocephalus because it's a great opportunity to meet and connect with others affected by this condition and it's a reminder to me and all those living with hydrocephalus that we are not in this alone. Most of all though, it represents hope. Hope that one day I will no longer need brain surgery to treat my hydrocephalus. Hope that one day there will be a cure."
-Jamie Wright, WALK participant & volunteer